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Thank you so much, Megan. I appreciate your story. We are still in the hospital. She had the gtube surgery and it has caused her so much pain. All she does is scream and cry. Feeling very helpless. They have started her on morphine yesterday. Today switched to Oxy with morphine as a...

Thank you, Tammy.  That is very sweet of you.  I really appreciate it!

Thank you, Tammy. That is very sweet of you. I really appreciate it!

<BR>Thank you, Tammy. That is very sweet of you. I really appreciate it!

Culture Thank you ladies. The CF doc said this was in the pseudomonas family. It is wrecking havoc on my little one. She was on bactrim for two weeks and during that time is when it went wild. I am just hoping with the two CF antibiotics they are using, since this is her first exposure to...

Culture Thank you ladies. The CF doc said this was in the pseudomonas family. It is wrecking havoc on my little one. She was on bactrim for two weeks and during that time is when it went wild. I am just hoping with the two CF antibiotics they are using, since this is her first exposure to...

Culture Thank you ladies. The CF doc said this was in the pseudomonas family. It is wrecking havoc on my little one. She was on bactrim for two weeks and during that time is when it went wild. I am just hoping with the two CF antibiotics they are using, since this is her first exposure to...

I am so sorry you are in too. We are inpatient right now too. My baby is 1. It is hard. How is Josh today?

I am so sorry you are in too. We are inpatient right now too. My baby is 1. It is hard. How is Josh today?

I am so sorry you are in too. We are inpatient right now too. My baby is 1. It is hard. How is Josh today?

<P>Has any of you or your children grew this bug:</P> <P> </P> <P>Stenotrophomonas Maltiphilia</P> <P> </P> <P>If so, what type of treatment did you receive?  Did it irradicate it completely or is it something that continues to come back and just lurks in hiding for the next time it wants to...

<P>Has any of you or your children grew this bug:</P> <P></P> <P>Stenotrophomonas Maltiphilia</P> <P></P> <P>If so, what type of treatment did you receive? Did it irradicate it completely or is it something that continues to come back and just lurks in hiding for the next time it wants to...

<P><BR>Has any of you or your children grew this bug:</P> <P></P> <P>Stenotrophomonas Maltiphilia</P> <P></P> <P>If so, what type of treatment did you receive? Did it irradicate it completely or is it something that continues to come back and just lurks in hiding for the next time it wants to...

<P>My baby girl is in the hospital for the next 7 to 14 days.  She is so sick.  She had a PICC line placed today and she will get a gtube placed next week.  She is 13 months old (came 14 weeks early).  She is struggling and the CF doctor said her xray had more markings than she would like to see...

<P>My baby girl is in the hospital for the next 7 to 14 days. She is so sick. She had a PICC line placed today and she will get a gtube placed next week. She is 13 months old (came 14 weeks early). She is struggling and the CF doctor said her xray had more markings than she would like to see on...

<P><BR>My baby girl is in the hospital for the next 7 to 14 days. She is so sick. She had a PICC line placed today and she will get a gtube placed next week. She is 13 months old (came 14 weeks early). She is struggling and the CF doctor said her xray had more markings than she would like to see...

This was NICE to finally see some support for CF. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/aboutCFFoundation/NewsEvents/2-3-Steelers-Use-Super-Bowl-To-Help-CFF.cfm">http://www.cff.org/aboutCFFoun...r-Bowl-To-Help-CFF.cfm</a>

This was NICE to finally see some support for CF. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/aboutCFFoundation/NewsEvents/2-3-Steelers-Use-Super-Bowl-To-Help-CFF.cfm">http://www.cff.org/aboutCFFoun...r-Bowl-To-Help-CFF.cfm</a>

This was NICE to finally see some support for CF. <br /> <br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/aboutCFFoundation/NewsEvents/2-3-Steelers-Use-Super-Bowl-To-Help-CFF.cfm">http://www.cff.org/aboutCFFoun...r-Bowl-To-Help-CFF.cfm</a>

Thank you so much for posting the article. It is appreciated.