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CF is kind of funny. Different people have different symptoms. That's what sort of makes it so hard. I know of one person that was diagnosed because of severe skin problems. Turns out that CF causes vitamin deficiencies so it caused the skin issues. Smart doc that picked that one up... <br />...

How sad- this family is dealing with so much. CF can be hard enough without all of the other issues she has. Has the family contacted CFRI? www.cfri.org. They might know of resources to help. Also, I think Boomer Esiason's org has help. And, if you call Bev Donelson at 888-307-4427 she might...

How sad- this family is dealing with so much. CF can be hard enough without all of the other issues she has. Has the family contacted CFRI? www.cfri.org. They might know of resources to help. Also, I think Boomer Esiason's org has help. And, if you call Bev Donelson at 888-307-4427 she might...

How sad- this family is dealing with so much. CF can be hard enough without all of the other issues she has. <br /> <br />Has the family contacted CFRI? www.cfri.org. They might know of resources to help. Also, I think Boomer Esiason's org has help. <br /> <br />And, if you call Bev Donelson...

Hi All, I need your opinions if you have a sec. :-) I am working on a dvd project with Dr. Cline and need to come up with interesting chapter titles. This is not my forte! Do you think they are interesting enough? If you read them, would you be inspired to watch the segment? Thanks so much...

Hi All, I need your opinions if you have a sec. :-) I am working on a dvd project with Dr. Cline and need to come up with interesting chapter titles. This is not my forte! Do you think they are interesting enough? If you read them, would you be inspired to watch the segment? Thanks so much...

Hi All, <br />I need your opinions if you have a sec. :-) I am working on a dvd project with Dr. Cline and need to come up with interesting chapter titles. This is not my forte! <br /> <br />Do you think they are interesting enough? If you read them, would you be inspired to watch the segment...

Hi Lauren, Yes, you are right- my son had meconium ileus- so that is what triggered the genetic testing. There was no need for anything else (according to the docs at the time). But now, as I ponder this, I am very curious. I wonder if we should get one to see what the kids' chloride levels...

Hi Lauren, Yes, you are right- my son had meconium ileus- so that is what triggered the genetic testing. There was no need for anything else (according to the docs at the time). But now, as I ponder this, I am very curious. I wonder if we should get one to see what the kids' chloride levels...

Hi Lauren, <br />Yes, you are right- my son had meconium ileus- so that is what triggered the genetic testing. There was no need for anything else (according to the docs at the time). But now, as I ponder this, I am very curious. I wonder if we should get one to see what the kids' chloride...

Hi Liza, Lucky!!! Can I fit in your suitcase? Yes, absolutely, get the card. Unless you really like waiting in line. ;-0 It really does have it's benefits and only takes a few minutes to get plus is free. If you don't need it, then don't pull it out but at least you have it if you need it...

Hi Liza, Lucky!!! Can I fit in your suitcase? Yes, absolutely, get the card. Unless you really like waiting in line. ;-0 It really does have it's benefits and only takes a few minutes to get plus is free. If you don't need it, then don't pull it out but at least you have it if you need it...

Hi Liza, <br />Lucky!!! Can I fit in your suitcase? <br /> <br />Yes, absolutely, get the card. Unless you really like waiting in line. ;-0 It really does have it's benefits and only takes a few minutes to get plus is free. If you don't need it, then don't pull it out but at least you have it...

"You can't diagnose cf with genetics alone but I think people are smart enough that they shouldn't sugar coat it." Oh Lauren- I do want to say- my kids were diagnosed with genetics alone. Neither has ever had the sweat test. Both are D508 so that made it easy but it is possible. :-) Talk...

"You can't diagnose cf with genetics alone but I think people are smart enough that they shouldn't sugar coat it." Oh Lauren- I do want to say- my kids were diagnosed with genetics alone. Neither has ever had the sweat test. Both are D508 so that made it easy but it is possible. :-) Talk...

"You can't diagnose cf with genetics alone but I think people are smart enough that they shouldn't sugar coat it." <br /> <br />Oh Lauren- I do want to say- my kids were diagnosed with genetics alone. Neither has ever had the sweat test. Both are D508 so that made it easy but it is possible. :-)...

Thx for taking the time to look at this and give feedback. I'll share your thoughts with the design board. As far as the link to the CRMS, it's coming hopefully soon. This is a work in progress and has taken a year to do even this far. I'll keep you posted and again, thx so much for your thoughts.

Thx for taking the time to look at this and give feedback. I'll share your thoughts with the design board. As far as the link to the CRMS, it's coming hopefully soon. This is a work in progress and has taken a year to do even this far. I'll keep you posted and again, thx so much for your thoughts.

Thx for taking the time to look at this and give feedback. I'll share your thoughts with the design board. As far as the link to the CRMS, it's coming hopefully soon. <br /> <br />This is a work in progress and has taken a year to do even this far. I'll keep you posted and again, thx so much...

Subject heading: New Resource to Help Parents Deal with False Positives in Newborn Screening Dear Colleagues, The Cystic Fibrosis Foundation is excited to announce a vital new resource for parents whose infants receive a positive newborn screen for cystic fibrosis (CF)...