Cystic Fibrosis Forum (EXP)

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  1. J

    Azithromycin

    I'm on every day b/c I had trouble remembering to take it sometimes on the m/w/f schedule when I went off to college. I've just stayed on every day since then. Half the time I don't know what day it is anyway, lol!
  2. J

    Azithromycin

    I'm on every day b/c I had trouble remembering to take it sometimes on the m/w/f schedule when I went off to college. I've just stayed on every day since then. Half the time I don't know what day it is anyway, lol!
  3. J

    Amount of Sleep per day

    I feel well rested with 9 hours of sleep, but I usually only get 8. I get really tired and have to nap the next day if I get less than 8.
  4. J

    Amount of Sleep per day

    I feel well rested with 9 hours of sleep, but I usually only get 8. I get really tired and have to nap the next day if I get less than 8.
  5. J

    Amount of Sleep per day

    I feel well rested with 9 hours of sleep, but I usually only get 8. I get really tired and have to nap the next day if I get less than 8.
  6. J

    Recruitment for VX combined

    I talked with my doctor about this a couple of weeks ago at an appointment, and followed up with one of the research coordinators via e-mail. I was told that spots will likely be very limited so they couldn't promise me anything. I really hope I get to participate though! Even if I ended up on...
  7. J

    Recruitment for VX combined

    I talked with my doctor about this a couple of weeks ago at an appointment, and followed up with one of the research coordinators via e-mail. I was told that spots will likely be very limited so they couldn't promise me anything. I really hope I get to participate though! Even if I ended up on...
  8. J

    Recruitment for VX combined

    I talked with my doctor about this a couple of weeks ago at an appointment, and followed up with one of the research coordinators via e-mail. I was told that spots will likely be very limited so they couldn't promise me anything. I really hope I get to participate though! Even if I ended up on...
  9. J

    New home IV med

    Yes! Whether I'm at home or at the hospital, I typically feel worse for the first 2-3 days, then start feeling better.
  10. J

    New home IV med

    Yes! Whether I'm at home or at the hospital, I typically feel worse for the first 2-3 days, then start feeling better.
  11. J

    New home IV med

    Yes! Whether I'm at home or at the hospital, I typically feel worse for the first 2-3 days, then start feeling better.
  12. J

    new clinic - new outlook

    That's great that you've found a place that you like! I will say this- I did hospital stays until I was in high school, and after that I have done almost exclusively home IV's until last year. But now that I am a mom, I do at least my first week in the hospital and it makes a HUGE difference...
  13. J

    new clinic - new outlook

    That's great that you've found a place that you like! I will say this- I did hospital stays until I was in high school, and after that I have done almost exclusively home IV's until last year. But now that I am a mom, I do at least my first week in the hospital and it makes a HUGE difference...
  14. J

    new clinic - new outlook

    That's great that you've found a place that you like! I will say this- I did hospital stays until I was in high school, and after that I have done almost exclusively home IV's until last year. But now that I am a mom, I do at least my first week in the hospital and it makes a HUGE difference...
  15. J

    Marriage issues

    To the OP, it sounds like you have your hands full. I think it would be a great idea if your husband could go to therapy with you- it might take some outside perspective to realize that he isn't giving you the help and support you need to have a happy marriage. Hugs to you, and just hang in...
  16. J

    Marriage issues

    To the OP, it sounds like you have your hands full. I think it would be a great idea if your husband could go to therapy with you- it might take some outside perspective to realize that he isn't giving you the help and support you need to have a happy marriage. Hugs to you, and just hang in...
  17. J

    Marriage issues

    To the OP, it sounds like you have your hands full. I think it would be a great idea if your husband could go to therapy with you- it might take some outside perspective to realize that he isn't giving you the help and support you need to have a happy marriage. Hugs to you, and just hang in...
  18. J

    kidney stones

    I had a lithotripsy done last year to get rid of a large stone. It actually never caused me any pain, we found it b/c of an accidental abdominal x-ray, haha. I feel really lucky to have it gone without having to deal with the pain. I didn't realize it was so common for CFers, I hope I don't get...
  19. J

    kidney stones

    I had a lithotripsy done last year to get rid of a large stone. It actually never caused me any pain, we found it b/c of an accidental abdominal x-ray, haha. I feel really lucky to have it gone without having to deal with the pain. I didn't realize it was so common for CFers, I hope I don't get...
  20. J

    kidney stones

    I had a lithotripsy done last year to get rid of a large stone. It actually never caused me any pain, we found it b/c of an accidental abdominal x-ray, haha. I feel really lucky to have it gone without having to deal with the pain. I didn't realize it was so common for CFers, I hope I don't get...
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