Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. N

    Discussing PICC.... What Will Surgical Consult Be Like?

    I didn't notice your update so disregard last post.. I weigh 160lbs and I'm 5' 9. I'm male. My port definitely shows and i am self conscience of it. If your skinny they stick out like a sore thumb. I've heard if you have some weight on you they arnt noticeable. I'm not extremely skinny and it...
  2. N

    Discussing PICC.... What Will Surgical Consult Be Like?

    I have had a dozen piccs. The first one was at sixteen years old and I was literally so nervous I vomited on myself. The last picc attempt they hit a nerve in my arm and it felt like a bolt of lightening! Granted I've had rare expieriences, I will still urge you to get a port placed. The...
  3. N

    g tube advice

    For allansarmy---- I know exactly what your teenager is going through. It is extremely embarrassing and makes you very self conscious to have a visible tube sticking out of you. It makes me not want to go to water parks or do social things as such with your peers. If I was you I would honestly...
  4. N

    Whats the best brand of Nebulizer???

    I have a pari pro i believe.. and its a piece of garbage. Ive had three of these and I burn them up in 6 months. Dont know how, dont ask. They're also loud buggers. I also find they lose pressure and treatments end up taking me 20+ minutes for each dose of medication. When you have to do two to...
  5. N

    Whats the best brand of Nebulizer???

    I have a pari pro i believe.. and its a piece of garbage. Ive had three of these and I burn them up in 6 months. Dont know how, dont ask. They're also loud buggers. I also find they lose pressure and treatments end up taking me 20+ minutes for each dose of medication. When you have to do two to...
  6. N

    Result from the pneumathorax is i need a lung transplant

    Its alright to ask anything you want. I have learned that these forums here on this page is the biggest ace in your hand against your fight with cf. To answer your questions- you said something about theme not wanting to give you staples or something? With the procedure I mentioned, they make...
  7. N

    Result from the pneumathorax is i need a lung transplant

    Its alright to ask anything you want. I have learned that these forums here on this page is the biggest ace in your hand against your fight with cf. To answer your questions- you said something about theme not wanting to give you staples or something? With the procedure I mentioned, they make...
  8. N

    Result from the pneumathorax is i need a lung transplant

    Three years ago I went through the same. I had 5 phneumos in 6 weeks, same lung. They evaluated me for a transplant and I met a new dr during that horrible process. I hope that you see this message because I may have an answer for you. The new dr I met suggested I get a procedure called a...
  9. N

    Result from the pneumathorax is i need a lung transplant

    Three years ago I went through the same. I had 5 phneumos in 6 weeks, same lung. They evaluated me for a transplant and I met a new dr during that horrible process. I hope that you see this message because I may have an answer for you. The new dr I met suggested I get a procedure called a...
  10. N

    Rash around my bottom/scrotum

    Well. Thanks to the people who posted in the later half of the comments for making me feel better about the first few who brought me down for whatever reason..? I think the situation is fine and under control now. I was finally able to wash myself and used some gold bond powder and its already...
  11. N

    Rash around my bottom/scrotum

    Well. Thanks to the people who posted in the later half of the comments for making me feel better about the first few who brought me down for whatever reason..? I think the situation is fine and under control now. I was finally able to wash myself and used some gold bond powder and its already...
  12. N

    feeding tube and enzymes

    I just had my first feeding tube placed this week. Ive asked the drs and they havent been able to give me a definitive answer so I know ill be able to get one here. When do you take your enzymes if you run the feeding tube over night while you sleep? Do I just take a full meals dose right when I...
  13. N

    feeding tube and enzymes

    I just had my first feeding tube placed this week. Ive asked the drs and they havent been able to give me a definitive answer so I know ill be able to get one here. When do you take your enzymes if you run the feeding tube over night while you sleep? Do I just take a full meals dose right when I...
  14. N

    Rash around my bottom/scrotum

    I have been hospitalized and had a gtube placed which was painful this week. I havent been able to shower or properly cleanse myself due to pain from movement. I noticed two days ago some nasty funk I peeled from my scrotum. Now I am discharged and my scrotum is fine but I noticed a rash about...
  15. N

    Rash around my bottom/scrotum

    I have been hospitalized and had a gtube placed which was painful this week. I havent been able to shower or properly cleanse myself due to pain from movement. I noticed two days ago some nasty funk I peeled from my scrotum. Now I am discharged and my scrotum is fine but I noticed a rash about...
  16. N

    Testosterone or Anabolic steroids

    Yea, your s.o.l., even with very low testosterone, the drs I've seen were still very skeptical about giving them to me.
  17. N

    Testosterone or Anabolic steroids

    Yea, your s.o.l., even with very low testosterone, the drs I've seen were still very skeptical about giving them to me.
  18. N

    Testosterone or Anabolic steroids

    Update- Its been a little over two weeks now and I am seeing some improvements. My libido is way up from what it was. Im waking up with "morning wood" which is something I have not had since I was 16 lol. I also feel stronger.. (could be mentally). And I also have a better appetite and have put...
  19. N

    Testosterone or Anabolic steroids

    Update- Its been a little over two weeks now and I am seeing some improvements. My libido is way up from what it was. Im waking up with "morning wood" which is something I have not had since I was 16 lol. I also feel stronger.. (could be mentally). And I also have a better appetite and have put...
  20. N

    Testosterone or Anabolic steroids

    Ive also heard that the safest route is to do injectables. I agree the pills would be a problem because ive read some where that the liver will destroy the testosterone in pill form unless they add some agent that can prevent the liver from breaking it down which obviously would be harmful over...
Top