Cystic Fibrosis Forum (EXP)

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    what is the best insurance for people with Cystic Fibrosis

    To the last poster. Most insurances have a clause in them that states if a dependant ( a child of the carrier) is considered disabled they may recieve insurance as long as the parent or whoever carrying the insurance keeps the coverage and/or job. Its just somethign they dont want you to know...
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    I need some advice

    hey Image, did you ask anyone yet? hows things going Amanda
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    in classroom, what do u do when u needed to cough?

    Sometimes we are just in situations where we are no where to be spitting out the junk. I usually spit it out when I can. There is a trash can by my bed and the couch. Anyway during school I tried spitting into kleenexs but would run out evintually, plus i would be made fun of (oh well i didnt...
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    shaky and sweaty

    I get that too. I also had a blood glucose test done and it was fine. The only thing I can figure out is when I was tested I didnt have a spell or it only tests for diabetes. I have been told I have hypoglycimia, which is the opposite of diabetes, you get low blood sugar instead of high, and the...
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    CF Lung Transplant.....

    NO...most likely not. They want lungs in very very very good condition. A person with cf needs a double lung. They prefer a cadavair donor but some cases need living donors...where they take one lobe from two people (your left lung has 2 lobes and your right has 3-or the other way around). They...
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    question4 dr taylor

    See you just tought me something again. I didnt know about the mucus thing and that its either the vas is there or not. I have also heard of men being diagnosed only because they thought they were just having problems getting their wives pregnant only to find out they have no vas deferans. I...
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    Older Cf sufferers

    Cystic Fibrosis 2 Chat has all ages. lots of older CF people...above 35...i think the oldest member is 54...i think. sometimes there are debates but the managers are good at letting people say their opions but also (just like here) put a stop to out of hand stuff
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    question4 dr taylor

    I liked your post Julie. I found it imfomative on many levels. Although I do have conflicting information. I have heard of CF males getting women pregnant naturally (sex)...some even thought they couldnt get women pregnant because they hear the stats or were told all men are sterile and here...
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    How do I know.....

    Usually for me thats a sign for needing a tune up... especially if it keeps getting worse. The best thing to do is to call your doc and ask him what to do. Sometimes its still 'fixable' with only oral medication. But definatly call your doc if you have been feeling this way for a month. It will...
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    question4 dr taylor

    mockingbird. actually this is from my experience. alot of people with cf dont even know what their disease does besides what it does specifically to them. i know i didnt know anything past the lung and digestive issues till i decided to look stuff up for myself. i wish doctors would help educate...
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    How to convince my guy to get married.

    I just wanted to say to the annon poster that said life is to short to get married. I see where you are coming from. Honestly for ME personally I couldnt imagine my life without my husband. Truely i would be dead by now...i am serious. I was in a bad spot before I started dating him, healthy...
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    How to convince my guy to get married.

    Then I say why ruin a good thing. Just keep asking him...my friend is actually in a simliar situation. They are engaged though but he keeps putting off getting married. He gets scared that something will happen...like once he is truely happy she will leave him (she wont)...He has been screwed...
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    I need some advice

    I say ask someone. Whats the worst that can happen? He says no and you go anyway and have fun. YOu have guy friends? You could even ask a guy friend if they dont have a date and jsut go as friends and still have fun. In fact I liked when I went to prom with my guy friend we had alot of fun. He...
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    How to convince my guy to get married.

    Well first for finacial reasons I would say just do it as a symbol...take it from someone with experience...unless you have great coverage that will never ever be changed by marriage then whatever...but look at all aspects and what will change if you get married....trust me there is tons of...
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    I need some advice

    people will still find you attractive. It is true some people are kinda turned off by a disease, mainly because they are ignorant or not strong enough to handle such a thing...in a way cf kinda weeds out those people to where we dont have to deal to much with them. And you find true friends once...
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    Adults Only Sex stuff

    Yes spontanious is good but you get to a point that its either "hold that thought" so you can get a broncho dialator or have to stop right in the middle of everythign because of a cough attack...wonderful...I know some of my friends on here are probably grossed out now. But anyway i cant ever...
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    I need some advice

    Yeah its bothersom. I had the same problem. Mainly because I didnt ever notice anyone looking. I am now 22 and married (to my first bf and only ever)....All I can say is it will happen when you least expect it and you have admirers you just dont know about. Trust me you do. I was just like you...
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    long term effects i.e cancer?

    Wow I never thought of that. I would like to know too. Its a good idea to keep those thing in check anyway. Like ask for check ups and yearly testing. I know they want people over 40 (or is it 50) to have yearly colon check ups. Its especially important to check on things if its in your family...
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    I want to show you something........

    My friend actually used them for about 9 months. I just asked. So it was longer than what I thought. It just didnt work for him. Maybe it only really helps those that arent that sick. He is really sick and was when he started that stuff. It helped him at first like I said, but only energy which...
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    I want to show you something........

    I actually had a friend try this stuff. I was thinking about trying it myself after he did. He admitted to having more engery and such. But come to find out thats about it. His lung functions never improved. They got worse...I dont think because of the products but just because of CF. The sicker...
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