Cystic Fibrosis Forum (EXP)

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  1. C

    Oxygen

    Luke, I live in Weymouth outside of Boston and go to Children's Hospital.
  2. C

    Where's Emily?

    Emily you are from Boston? That's so cool I live right around Boston. Weymouth actually. Do you go to the Brigham?
  3. C

    Panic Attacks

    Tracy I am glad you have gotten your attacks more under control. I just started them so I haven't figured out how to control them yet but my mom helps me get through them. I just had one this morning but once I took my med it started to die down after a few minutes. I think once everything kind...
  4. C

    Oxygen

    I think for me it would benefit me at night to be on Oxygen. But my insurance won't cover it. I have to give them a document of what my O2 does during the night and if it's not low enough for them then they won't cover oxygen for me.
  5. C

    Panic Attacks

    I have been going through my evaluation for my lung TX and the past few months I have been having so much anxiety and then started having panic attacks. I went to see a psychiatrist who was actually the one I had to see for my evaluation and she put me back on zoloft and added Klonopin for the...
  6. C

    CF and Severe Fatigue

    <blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Mellissa is right. I have been on 2liters of O2 at night since April. I thought it was the end as well. Butafter about a week, what a difference in my quality of sleep. I am restfull now. I had been waking up so much at...
  7. C

    Chest pain

    Thanks guys for the info. The pain has gone away pretty much altogether except when i do PFT's then it kills. I just got out of the hospital this afternoon. I am doing the rest of my cleanout at home thank God. I hate being in the hospital it's the absolute worst!!
  8. C

    Chest pain

    I am having horrible chest pain right now in the upper left side of my chest. I am not having any trouble breathing and my O2 is 96. I am just wondering is it possible I pulled a muscle? It hurts when I move a lot too.
  9. C

    so frustrated with health...help!

    Wow that's really odd. I am trying to think of what it could be but I am drawing a blank. maybe you need to change your enzymes. That might help.
  10. C

    so frustrated with health...help!

    Have you not had a period for 7 months? If that is the case I would suspect maybe the symptoms are from pregnancy. And if you aren't pregnant I am not exactly sure what the problem could be. You should really talk in depth with your doc about what's been going on.
  11. C

    Quick question

    Seasprite, is your name really Bambi? If so that's really cool, I like it.
  12. C

    Advice TRavel Abroad

    I don't know anything about traveling since I have never done so. I hope you have fun though. <img src="i/expressions/face-icon-small-happy.gif" border="0"> Oh and how are your PFT's? I was told by my doc since mine are so low that it's not a good idea to fly. And my brother has had so many...
  13. C

    Anti-depressants

    Thanks steve for the info. I am having issues with anxiety lately so I was hoping my doc would put me on something to calm me down. I will bring up Xanax at the next appt!
  14. C

    Ear ache

    Hey Colleen, that's funny we are in similar situations! <img src="i/expressions/face-icon-small-happy.gif" border="0"> Thankfully my ear stopped hurting and I don't feel as dizzy and off balance as I did. I am hoping the Cipro will kill whatever I have quick!! <img...
  15. C

    liver problems

    Ohhh ya that's why. I only have inflammation and they said my liver is sludgy.
  16. C

    liver problems

    Wow. I only am on 300mg, maybe I don't have as much damage or something and that's why I am on the dose I am.
  17. C

    liver problems

    You take actigall twice? I only take it once. What dose is yours?
  18. C

    So Tired

    I don't think that's how it works. Even if your PFT's go down doesn't mean you will die sooner. Some people can live years and years when their PFT's are at 30% and others won't. It all depends on the person.
  19. C

    Recipes for CF Cookbook

    I posted this in the Off Topic thread but I will do it again here. Tjis is one of my fav recipes!! MONKEY BREAD 3 packages of buttermilk biscuit tubes 1 cup sugar (divided) 2 tsp cinnamon 1 cup butter 1/2 cup brown sugar Take 3 packages of buttermilk biscuit tubes (10 per roll) and cut each...
  20. C

    The reputation of this forum

    Julie I remember that specific poster. I was happy to answer questions and when I asked what do you want to know she never replied back and then started spamming the boards asking the same question over and over. It was rather rude and I did report her to the Mod's. I am happy to help anyone who...
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