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I have heard that CFers cannot go in Salt Water Pools. My grandson is 4 and my mother just purchased a home with a salt water pool. What are the risks as to why they cannot go in the pool? I know I read before on this site of people who were using Salt Water Pools just not Hot Tubs. Could...
My grandson has 3 mutations, but one is Delta F508 the other is R560K and Y569C ? Does that make sense? Ican't figure out how to tell the mutation (c.1679G>A and 1706A>G). Do you think since he has the DF508,that Kalydeco would be worth a try? He is 4 and on Medicaid
My grandson has 3 mutations, but one is Delta F508 the other is R560K and Y569C ? Does that make sense? Ican't figure out how to tell the mutation (c.1679G>A and 1706A>G). Do you think since he has the DF508,that Kalydeco would be worth a try? He is 4 and on Medicaid
Hi, my grandson, Jaden who is 4 has been in Karate for a month and he love's it. I told his CF team and they all said that was a great thing for him. His Mother and I did ask if there were any other kids with CF first though, which there were not.
Hi, my grandson, Jaden who is 4 has been in Karate for a month and he love's it. I told his CF team and they all said that was a great thing for him. His Mother and I did ask if there were any other kids with CF first though, which there were not.
I guess I was not clear: my daughter and Jaden's Daddy are both carriers. If you tested and it came out that you do not have CF nor are you a carrier then your son could not have CF. I understand that you are happy that the treament he is receiving is helping his symptoms but if they are...
I guess I was not clear: my daughter and Jaden's Daddy are both carriers. If you tested and it came out that you do not have CF nor are you a carrier then your son could not have CF. I understand that you are happy that the treament he is receiving is helping his symptoms but if they are...
I guess I was not clear: my daughter and Jaden's Daddy are both carriers. If you tested and it came out that you do not have CF nor are you a carrier then your son could not have CF. I understand that you are happy that the treament he is receiving is helping his symptoms but if they are...
<P>When my grandson was dx his daddy sat right there and said " there is no way he got it from me i tested negative". Well the pediatrician made a mistake in telliing us he was negative. Our Case Worker told him not only does he have the mutation she will find it. At our first clinic visit we...
<P>When my grandson was dx his daddy sat right there and said " there is no way he got it from me i tested negative". Well the pediatrician made a mistake in telliing us he was negative. Our Case Worker told him not only does he have the mutation she will find it. At our first clinic visit we...
<P>When my grandson was dx his daddy sat right there and said " there is no way he got it from me i tested negative". Well the pediatrician made a mistake in telliing us he was negative. Our Case Worker told him not only does he have the mutation she will find it. At our first clinic visit we...
Jaden's hands do the same thing. First time I saw that was before he was diagnosed and I thought it so strange. I remember wraping his hands in towels and rocking him thinking it must hurt. Isn't that funny (wierd) that I would find this now.
Jaden's hands do the same thing. First time I saw that was before he was diagnosed and I thought it so strange. I remember wraping his hands in towels and rocking him thinking it must hurt. Isn't that funny (wierd) that I would find this now.
Jaden's hands do the same thing. First time I saw that was before he was diagnosed and I thought it so strange. I remember wraping his hands in towels and rocking him thinking it must hurt. Isn't that funny (wierd) that I would find this now.
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