Cystic Fibrosis Forum (EXP)

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  1. R

    stressing out about how to feed everyone

    I feel your pain! My daughter is 20, diagnosed at 4 and dinner can be a challenge. Sometimes I will cook 2 versions of the same meal, a skinny version and a fat version. A little easier on me because most of the ingredients are the same and cook at the same pace so I don't have to keep track of...
  2. R

    Need answers

    My daughter was diagnosed with gastroparesis about 2 years ago and it has been hard on her and she has had the same problems. The doctors haven't come up with any great solutions. I've been researching quite a bit lately, I was motivated by another user on this forum whose screen name is Epona...
  3. R

    Section 504 for Child Starting School

    I had to constantly advocate for my daughter through her school years, even though I met with all her teachers in the beginning of every school year. A school nurse advised we get an IEP for "Other health impaired" and every year we made a formal plan for accommodations for her. It is a federal...
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