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Real life often interferes with doing nebulizer treatments, and the like. They're boring as hell, after all. Plus, after a set number of them, you start to get diminishing returns on investment (i.e., "is it really justified to waste SO MUCH ADDITIONAL TIME that could be spent enjoying life, for...

I just found out my dad still has a bunch of 8-oz. cans of Ensure Plus (strawberry flavor) at his place in New York. I no longer drink those, as I switched to the (somewhat more nutritious, and very sugary) Scandishakes months ago, but they're reportedly good until next year. Given their...

There are genetic conditions, though, that only manifest themselves later in life, so considering that "stupid" is working with the assumption that "hereditary=present from birth." It's actually just a product of ignorance about what CF, specifically is. My mom has done the "it's your dad's...

Gah! Same thing happened to me with Medicaid recently. If your doc thinks you need it, GET IT, no matter what you need to do. You can ruin your heart if it dips to dangerous levels at night (levels that need not be as low as those dumbass insurance companies require). Heck, get your doc to...

<blockquote>Quote<br><hr><i>Originally posted by: <b>cfmomma</b></i><br>Friends and family are always telling me "Oh, Harrison (my son) can always get a transplant if things get really bad", if it were only that simple.<hr></blockquote> Holy crap! What an ignorant and sociopathically uncaring...

The IUD is a source of hormones? Forgive my ignorance, I was under the impression that it's a copper or other inert device whose exact mechanism of preventing pregnancy is still largely a mystery to scientists.

Yeah, I had read about that case at Duke with the gal turned down for genomovar III specifically, which is why I made extra sure everyone I talked to KNEW I HAD THAT. I was quite surprised when the receptionist, a transplant coordinator and then a doctor implied they wouldn't exclude me on that...

Don't you know women aren't supposed to enjoy sex, and it's meant exclusively for popping out kids? Just kidding! Find some really hot fantasies or erotic literature and leave it around for hubby to find. Read it with him, making sure to nod sexily whenever you go past a particularly...

It depends. UNC gives you 5 antibiotics at once for several months after transplant in an attempt to eradicate it. Should that succeed, I believe, you don't have to deal with it afterwards. If it spreads to the new lungs, it can cause a ton of problems, yes. Still, overall, the risk isn't...

UNC doesn't accept NY Medicaid, which is one of the reasons I moved permanently in the first place. (Chapel Hill is a great spot, though, so as far as moving anywhere is concerned, I came out ahead.) NY Medicaid <i>would</i> have paid for an out-of-state transplant, but with no center except UNC...

B. cepacia effectively disqualifies you from transplant at virtually any hospital. I've only heard of a few exceptions being made in extraordinary circumstances, and those others have had virtually no success with these types of high-risk transplants. Nope, it's basically UNC or bust. That's...

Have you been diagnosed with B. cepacia? That might do it, or so I hear. I sometimes feel that way, although a bit of Advil helps with the fever and chills and overall crappiness.

Check out <a target=new class=ftalternatingbarlinklarge href="http://www.save-allan.org">Save-Allan.org</a> for my story (i.e., Medicaid turning down my transplant request, the only thing that could save my life, on the grounds that it would be too risky; there's guberment logic for ya), my...

<a target=new class=ftalternatingbarlinklarge href="http://www.puritan.com/">Puritan's Pride</a>, a major vitamin manufacturer, is having a sale on their website--order any vitamin or supplement, and get <b>TWO FREE BOTTLES</b> of the same thing. That's a fairly hefty savings, if you think about...

As someone who can't get married himself without losing health coverage--and, with CF, dying as a result--I sympathize with everyone here. And let me just say it impresses me greatly that, while droves are being forced to divorce in order to survive, politicians are obsessing about how gay...

A trick I've used recently--when my health coverage wouldn't pay for it--is to use one of those "$25 back if you fill a new prescription with us, and pay cash" promotions pharmacies use. I got an Eckerd gift card for that amount, so it came out almost free. CVS has a similar promotion that I've...

Ibuprofen is a wonder drug for me. If I take about 400-800 for a muscle ache, or fever, or anything, pretty much every symptom of this damned illness goes away, often until the next day or further. (I can tell when I'm *really* sick when this doesn't happen, and even the almighty Advil can't...

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>I assume that you still have the cepacia, post tx?<hr></blockquote> From what I've gathered, it depends. UNC's docs hit it with five antibiotics at once--the ones they determine to have the most chance of eradicating...

As a minor digression, how did you deal with the nausea (if at all), CheerColl? When I had that horrific nausea on Meropenem, my doc gave me Zofram, a whoppingly expensive anti-nausea drug, but it only partially helped. (Oddly enough, I haven't had that side effect from Meropenem since, even on...

Why, thanks. I hope it'll all work out, too, obviously. I'm in much better shape now than when I wrote that. <img src="i/expressions/face-icon-small-smile.gif" border="0"> And yes, love is the best thing ever... I'm 20, by the way.