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mamaScarlett: I'm glad the general consensus here seems to be that coffee is good! I have always loved it and noted it's benefits - especially first thing in the morning to open up airways, almost as good as an inhaler, imo. I just felt kind of silly relying on it so heavily I guess? To enjoy a...

I feel you! I haven't done a sleep study or had my thyroid checked, but I'm nervous that if i do either, they will say everything is fine and they don't know what's wrong, etc. etc... and then I'll be back at square one, with no answers. I guess it's better to be safe than sorry, though. I'm...

Thank you, guys! Melissa: I do stay away from energy drinks, as they make make me feel shaky, rapid heartbeat, etc. - they just don't make me feel good at all. Even coffee in the morning with albuterol is risky. I keep hearing mixed reviews about how coffee is great for CFers and how I should...

Zero Energy/Reliant on Caffeine It seems as though I can't get through an entire day without some form of caffeine, often multiple cups of coffee in a day. I tried cutting back and drinking decaf because it can't be healthy, but I only lasted a little while before complete exhaustion caught up...

Thank you for your advice! I made an appointment with my doctor for tomorrow so i guess I'll see what his thermometer says and go from there.

I keep getting reads of very low temperatures on my thermometer. I mean, it's probably a very cheap one, and at first I just thought it was a fluke, but this is the second instance in which I got these readings while not feeling well, and it's consistent. Last time was about a month ago, and it...

Thank you every one for your input! I think I'll be calling the clinic to see if I can get some tests done - maybe abdominal x-rays - because its persistence is starting to worry me. In the meantime, I've been trying to eat healthier and looking into different types of diets (I've seen some...

I've been having some stomach issues that I thought were a just a result of lots of antibiotics (I was on clarithromycin, ehtambutol, and riffampin for about a year, with added levaquin near the end, and then tobra and zosyn through IV for two weeks), but I've been off of all the antibiotics for...

Thank you, everyone, for your advice. I ended up mentioning the pain to a nurse who had me call my doctor who sent me for x-rays and everything looked fine! They said it might just be up against the wall of the vein and irritating it, which could explain why I was also experiencing some...

I cultured positive for MAC back in March, and was on a combination of three medications (Riffampin, Ethambutol, and Clarithromycin) up until this week. A bronchoscopy in August came back negative for the bacteria, but my doc kept me on the antibiotics for another few months just to be sure. He...

Hello everyone, I'm not on the forums very often, but I was just wondering if anyone has had experience with a PICC line and chest pain? This is only my third line, and it was put in yesterday morning - the other two were in my left arm, but there was too much scar tissue from the previous lines...

I would, except of course this happens on a weekend, when they're closed. I did get really concerned about it though, and ended up going to a walk-in clinic where they told me that my oxygen was really low and sent me to the ER. Except when I get to the ER my oxygen was 99%??? They did blood...

Hmm, quick update: I have a very low temperature now. Last night it was 96, which i wasn't too worried about, because I tend to run low, around 96 or 97. Now it's reading 95/94? Unless there is something seriously wrong with my thermometer, I think I should be pretty concerned about that? I...

Hello, I was just wondering if anyone on here has ever had any experiences with petechiae? At least, I think that's what I've got going on right now, with a little help from google. I've seen it there before - little red and purple dots beneath the skin that don't itch, looks like something...

Thanks, guys! I have been on and off extra vitamin D in the past, so maybe I'm in need of that again. And I'm also on Levaquin right now, so maybe it's a combination of the two?

Well, I already take SourceCF vitamins (ABDE & K). Are the ones you're talking about any different?

Hello! So, I have been having quite a bit of hair/skin/nails problems lately and was just wondering if any one else on here has experienced similar issues, or if it's even CF-related at all. I'm 19 and have cystic fibrosis, and have always had rather sensitive skin. I can't really use anything...

Thank you both very much, I really appreciate it!

I posted this in "Teenagers and Young People" already but it was suggested I post somewhere else, so this is a repost, hope that's okay. I actually posted this yesterday but i'm still experiencing the same symptoms. I haven't been able to get in contact with my doctor, so i was just hoping I...

To the above post, is there something in particular you think i should be worried about?