Cystic Fibrosis Forum (EXP)

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  1. J

    Talking to Children about CF issues

    My son is 9yo and has been dxed with CF since he was 6 months old. His symptoms have not interfered with most of his daily life and that is a big issue for him. He is trying to minimize its impact. He does not want his friends to know he has it and he does not want people to see what...
  2. J

    Tube and limitations

    After talking with you all and reading a lot more than had been, I talked to my son's doctor and we are looking at ideas related to a feeding tube. I want chase down and pick everyone's brain. My son is 9 and does not have a good understanding about feeding tubes (for that matter his mom...
  3. J

    Stubborn child and nutrition

    confused; My son Parker is 9yo and has been DXed since he was 6months old. The primary problem throughout his journey has been diet and nutrition. Everyday it is close to hand to hand combat to get him to take in enough calories. He does not need a feeding tube (yet) but we are always...
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