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Just a question. When your child or yourself (with CF) start getting sick such as with a cold and stuff who do you call. Your CF doctor or your primary care doctor or Pediatrician? I get confused on who I should really call. I typically call the Pediatrician. But when I asked one of the...

I was wondering if anyone knows how to get a 6 year old to spit the gunk out when he coughs it up? He always swallows. Is this still to young? Am I expecting too much?

If you or your child is on the Ibuprofen therapy do you have any problems getting the ibuprofen? Austin takes Motrin Tab 600 mg twice daily. So a total of 1200 mg daily. His insurance pays for it because it is a prescription. This is the first time I had to deal with this problem. I didn't...

Austin will be starting school soon. He is 6 and will be in the 1st Grade this year. When I met with his teacher to educte her on CF and his other conditions (Chiari malformation with shunted hydrocephalus) I found out his lunch time is at 10:30 this year. Last year it was at 11:30. So...

<u><b>9 Words Women Use </b></u> 1.) Fine: This is the word women use to end an argument when they are right and you need to shut up. 2.) Five Minutes: If she is getting dressed, this means a half an hour. Five minutes is only five minutes if you have just been given five more minutes to...

When does a doctor typically decide to put a port in instead of a PICC? My son Austin is 6 and has had a picc line everyyear since he was diagnosed at 7 months. I have had different nurses and RT ask if he had a port and I didn't really know what they were talking about. At least until I came...

Ok here is my dilema. I still am not very educated on this. My brother is coming home to visit. He has been living in Louisana. His wife is from the Philipines. This will be the first we have seen him in almost 2 1/2 years. About a 1 1/2 years ago they had a baby boy. Right before the...

O.k. I have been reading these posts continuously since I found this site. Why is it that alot of the CF kids and adults would rather eat broccoli than sweets. When Austin was in the hospital every meal he would order mac and cheese, mashed potatoes, and then he would alternate between...

Does anyone worry if they are giving too many enzymes. Sometimes like today for example. I fixed lunch for my son and gave him his 4 enzymes and then he only ate his hotdog and chocolate milk. And then sometimes he will have more for a snack than he would at a meal and he is only taking 2...

Is anyone participating in any studies. Austin is participating in a FUN STudy. It's a nutrtional study. We just keep diaries of his meals. And i have learned a lot from it. I did not know about needing the extra calories and such. It is a 18 month study. We are meeting on July 24 to do...

<img src="i/expressions/face-icon-small-blush.gif" border="0">Does anyone ever hear people say "Are you sure he has Cystic Fibrosis he looks healthy to me?" There is this lady in our little town we live in and she works at the local Walmart and there for the longest time she would ask me that...

How many different medications are your children on. Austin is on: 4 Creon with meals 2 creon with snacks Prevacid 30 mg. Ibprofen 600 mg twice daily ADEK Multi-Vitamin Plus right now he is taking 2 pills Bactrim for 3 weeks after being released from the hospital. His vest therapy 2 times a...

I have a 6 year old. I have known him since he was 4 mos. old. His mother was dating my son at the time. (This is not his biological son) He was diagonosed at 7 mos. old. He went to the hospital because he was vomitting profusely. He was diagoned with Arnold Chiari Malformation and...