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My daughter is 3 and her poop is generally very normal if we are getting her creon just right. Today she had bright green poop...I mean so green and whatever is making it that color is even leaching into the toilet bowl water and making it greenish. Anyone have any idea what is causing this...
My daughter has 2 mutations that are being targeted by drugs in clinical trials (G551D -- VX770 and W1282X -- Ataluren). I am trying to be optimistic that these drugs will work well and there might be good treatments for her in the future. I was wondering how optimistic everyone is about these...
My daughter will be 3 in a month and weighs 25 lbs. She was just diagnosed a couple months ago and has no respiratory symptoms, but is pancreatic insufficient. She is on Creon 10 (now 12000), 1 capsule with meals and 1/2 with snacks. She is definitely better, but lately her poop has been more...
My almost 3 year daughter was diagnosed with CF a couple weeks ago based on a positive sweat test. Her only symptoms that prompted the test were yellow stool and occasional ( maybe 5-10 times ever) grease in the toilet. No diarrhea, abdominal pain, gas, bloating etc. No resp symtpoms. She is...
We had my daughter's first official visit at Riley's CF Center yesterday. The RT wants us to start CPT and then think about the vest in 6 months or so. She is almost 3 and does not have any respiratory symptoms, but obviously we want to keep it that way. She is very interested in the...
My 2 year old just started creon on monday. She has been doing fine all week but woke up vomiting in the middle of the night. She has only vomited one other time in her life due to a stomach virus. She also had a mild fever. Is this related to the creon or just a stomach bug??
I will call...
I started my 2.5 year old on Creon on Monday. I have been trying to empty the capsule in a couple teaspoons of applesauce. She is ok with applesauce but has never been a huge fan of it. I notcied last night and this morning that she is holding the applesauce in her mouth and I can hear her...
Hey everyone. I just joined yesterday as my 2.5 year old daughter, Ava, just tested positive on a sweat test yesterday. I am shocked and can't stop crying <img src="i/expressions/face-icon-small-sad.gif" border="0"> Our ped and the gastroenterologist wanted her tested as a rule out and both...
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