Cystic Fibrosis Forum (EXP)

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  1. R

    For Randy

    To my best friend, my buddy, my Nephew. This is his site: http://www.randysnider.com/ His birthday is Monday. He would have been 17. I sure miss you Randford.
  2. R

    Great Website!

    I just found this one. It's really good and explains a complicated process. Check it out when you have time. http://www.yourgenesyourhealth.org/cf/whatisit.htm Randford, 44/CF/Osteo
  3. R

    Great Website!

    I just found this one. It's really good and explains a complicated process. Check it out when you have time. http://www.yourgenesyourhealth.org/cf/whatisit.htm Randford, 44/CF/Osteo
  4. R

    Which is worse?

    Recently, the CF doctor diagnosed me with having Staphylococcus, although the levels are low. She said that the environment is not yet suitible for hosting Pseudomonas but that could change. Are both bacteria basically the same or is one worse than the other? Randford, 44/CF/Osteo
  5. R

    The Future

    I'm 44. I was diagnosed last year. The symptoms are mild but I was recently diagnosed with osteoporosis. I've had some respitory reactions to what I used to consider mild issues like reaction to chemicals and pets. The doctor even found that my testosterone levels are so abnormally low, they're...
  6. R

    Help

    Just wandering. Randford, 44/CF/Ostio
  7. R

    Help

    I have Delta F-508 and a rare mutation P140S. Does anyone else have this one?
  8. R

    Thank you all for honoring the life of Randy Snider.

    <br> My family and I just wanted to thank those of you who visited Randy Snider's memorial web site, http://www.randysnider.com/ . He passed away August 19, 2005 from CF. He was a Son, a Grandson and a Nephew. He was only 15.<br> <br> Family encouraged us to share the site with others on the...
  9. R

    OK, I'm confused...

    OK, what gives? I just found out that I have CF-related Osteoporosis. I'm sure I'll be placed on some medical regiment. Then I see this article and now I'm confused. Is there any truth to this?<br> <br> http://www.medicalnewstoday.com/medicalnews.php?newsid=27487<br> <br> <b>Randford</b>, 43/CF
  10. R

    CF and Androgen Levels

    I'm wondering if any CF male patients have had erratic androgen levels -- low testosterone. My CF doctor said that it is a distinct possibility although I'm not sure of any direct studies on this issue. The term is call hypogonadism and is listed in Bone Mass Density studies as a culprit. It...
  11. R

    CF-Related Osteoporosis

    <div><font size="2" face="Arial, Helvetica, sans-serif">I'm an adult who was recently diagnosed with CF. I just had a BMD test done today. I'm 30% below what I should be for my age. I have osteoporosis. It all makes since. It's CF-related. According to a CF-BMD study, Maldigestion...
  12. R

    `Fat Controller' may hold the key to breakthrough...

    Here is the direct link from the University of Dundee:<br> <br> http://www.dundee.ac.uk/pressreleases/2006/prjuly06/cysticfibrosis.html<br> <br>
  13. R

    NEWS ALERT!!

    Released July 25, 2006<br> <br> Scientists have discovered a fat-controlling protein which could lead to breakthrough treatment for cystic fibrosis...<br> <br> See link:<br> <br> http://www.thisislondon.com/news/articles/PA_NEWA35887811153749011A0000?source=PA%20Feed<br> <br> Randford, 43/CF<br>
  14. R

    What will happen?

    <b>Hello Everyone,<br> </b><br> I wondering what kind of health issues are there for all of us who are heterozygous for Delta F-508 and a mutation of that gene that creates CF?<br> <br> I was recently diagnosed and sInce my combination is so rare, Delta F-508 and P-140S, I'm wondering what I...
  15. R

    Delta F-508 and P-140S Club?

    I'm just wondering if anyone has the combination, Delta F-508 and P-140S and what problems you may have.<br> <br> Thanks,<br> <br> <b>Randford,<br> </b>CF/43
  16. R

    New Adult CF Diagnosis

    I am 43 and was recently diagnosed with CF. My Nephew died last year at age 15 from CF. He was Homogygous, or had two copies of Delta F-508. I have one copy of Delta F-508 and one copy of P-140S, a rare mutation. So rare that there is only one other person on the 30,000 CF patient database that...
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