Cystic Fibrosis Forum (EXP)

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  1. L

    Vitamin D and lung health

    "Jeana, <br /> <br />I have read from numerous sources and also was told by the dietitian at my clinic that you can only absorb 500mg of calcium at a time. So anything over 500mg in a single dose goes unused." <br /> <br />Actually, the reason doctors say to take vitamin D with your calcium...
  2. L

    Vitamin D and lung health

    At one point when I was 17 I had no detectable immune system and the doctors had to "rebuild" it with shots. Then when I was 18 and was diagnosed with RA they ran all kinds of blood work and found no detectable trace of vitamin D. I'm not sure if the two are connected...? But it took me a year...
  3. L

    Vitamin D and lung health

    At one point when I was 17 I had no detectable immune system and the doctors had to "rebuild" it with shots. Then when I was 18 and was diagnosed with RA they ran all kinds of blood work and found no detectable trace of vitamin D. I'm not sure if the two are connected...? But it took me a year...
  4. L

    Vitamin D and lung health

    At one point when I was 17 I had no detectable immune system and the doctors had to "rebuild" it with shots. Then when I was 18 and was diagnosed with RA they ran all kinds of blood work and found no detectable trace of vitamin D. I'm not sure if the two are connected...? But it took me a year...
  5. L

    How long do you neb Hyper-Sal?

    My hyper-sal treatment usually takes between 25-45 minutes depending on how new the cup and tube are... : /
  6. L

    How long do you neb Hyper-Sal?

    My hyper-sal treatment usually takes between 25-45 minutes depending on how new the cup and tube are... : /
  7. L

    How long do you neb Hyper-Sal?

    My hyper-sal treatment usually takes between 25-45 minutes depending on how new the cup and tube are... : /
  8. L

    Trouble Breathing

    I had blood tests run for anemia and a heart echo a few years ago before I was diagnosed with CF to determine why I had trouble breathing and why I was so light headed most of the time and everything came back normal. After I was diagnosed with CF the doctors assumed they'd found the cause of my...
  9. L

    Trouble Breathing

    I had blood tests run for anemia and a heart echo a few years ago before I was diagnosed with CF to determine why I had trouble breathing and why I was so light headed most of the time and everything came back normal. After I was diagnosed with CF the doctors assumed they'd found the cause of my...
  10. L

    Trouble Breathing

    I had blood tests run for anemia and a heart echo a few years ago before I was diagnosed with CF to determine why I had trouble breathing and why I was so light headed most of the time and everything came back normal. After I was diagnosed with CF the doctors assumed they'd found the cause of my...
  11. L

    Trouble Breathing

    I have trouble breathing even with all my medicines. When I tell my doctor, his only response is that I shouldn't be having trouble because I have full lung function. Should I try to push this? Or is it normal to have trouble breathing even when your tests come back full capacity? It gets worse...
  12. L

    Trouble Breathing

    I have trouble breathing even with all my medicines. When I tell my doctor, his only response is that I shouldn't be having trouble because I have full lung function. Should I try to push this? Or is it normal to have trouble breathing even when your tests come back full capacity? It gets worse...
  13. L

    Trouble Breathing

    I have trouble breathing even with all my medicines. When I tell my doctor, his only response is that I shouldn't be having trouble because I have full lung function. Should I try to push this? Or is it normal to have trouble breathing even when your tests come back full capacity? It gets worse...
  14. L

    The Great Christmas Debacle

    You know, I really don't worry about it. It seems like my grandparents are more worried about me catching people's germs than I am. I just live my life and not worry what anyone else is doing. If they're sick, well, they have as much right to attend functions as I do. Where do I get off telling...
  15. L

    The Great Christmas Debacle

    You know, I really don't worry about it. It seems like my grandparents are more worried about me catching people's germs than I am. I just live my life and not worry what anyone else is doing. If they're sick, well, they have as much right to attend functions as I do. Where do I get off telling...
  16. L

    The Great Christmas Debacle

    You know, I really don't worry about it. It seems like my grandparents are more worried about me catching people's germs than I am. I just live my life and not worry what anyone else is doing. If they're sick, well, they have as much right to attend functions as I do. Where do I get off telling...
  17. L

    Update!..I had my bone density scan..

    Yeah, I was told at 18 that I had osteopenia and my hips and spine and osteoporosis in my hands. All the docs told me to do was take calcium and vitamin D every day. They said it's really no big deal, especially in light of everything else I have, so there was no point putting me on actual meds.
  18. L

    Update!..I had my bone density scan..

    Yeah, I was told at 18 that I had osteopenia and my hips and spine and osteoporosis in my hands. All the docs told me to do was take calcium and vitamin D every day. They said it's really no big deal, especially in light of everything else I have, so there was no point putting me on actual meds.
  19. L

    Update!..I had my bone density scan..

    Yeah, I was told at 18 that I had osteopenia and my hips and spine and osteoporosis in my hands. All the docs told me to do was take calcium and vitamin D every day. They said it's really no big deal, especially in light of everything else I have, so there was no point putting me on actual meds.
  20. L

    how many treatments do you do a day?

    I do treatments twice a day. Albuterol and Hyper-sal in the morning with 10 breaths on the a cappella and the same at night except with a dose of Pulmozyme.
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