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I will certainly put that on my list to ask for along with fecal fat and genetic testing I think. Do I need to ask for a specific type of genetic testing or is there a general one to cover all bases? When I was pregnant with my son they said we had a chance for downs and he does not physically...

We had a follow up with GI doc yesterday. When I brought up the question of performing genetic testing she informed me that Morgan's sweat chloride results were 13 & 17 and "not even close". I did show her Morgans fingernails as they grow down around her finger tips. The GI doc then mumbled...

Do you know if miralax would effect the results of the fecal test?

ejh1998, I am sure the diagnosis was difficult to get but at the same time it must have been somewhat of a relief so you could start the process of maintaining health for your daughter. Thank you for sharing your story with me. Did your daughter test positive for a sweat test or did you need to...

I am so thankful for all the advice you have given me, thank you so much! I feel better prepared for future appointments now. I know her BM's can clear a room with the smell, my son and husband clear out quick when it's diaper changing time. I did mention this to the GI doctor but she did not...

They did not, we didn't have a sample to take to GI doc just pics. We had the sample for her family doc and they just said we needed to see a specialist since it was so abnormally large in size

Thank you for your response juliefaler. Did your daughter have any other symptoms before diagnosis? It's really hard not knowing what is going on with your child and they are too young to tell you specifics about their discomfort. I am so happy to hear the enzymes have helped her, I'm sure that...

Thank you jaimers, do you know is this something her family doctor should refer her to or would I be able to just call a CF center to make an appointment? Not sure how all this would work. I just don't want to delay getting her help if it could prevent damage to her.

I am new to this forum so I apologize in advance if I don't post this in the appropriate place. I am the mother of 2. My son Mikhail will be 5 in August and my daughter Morgan turned 1 in January. I had a complicated pregnancy with my daughter, had bleeding several times (ultrasound techs...

I am new to this forum so I apologize in advance if I don't post this in the appropriate place. I am the mother of 2. My son Mikhail will be 5 in August and my daughter Morgan turned 1 in January. I had a complicated pregnancy with my daughter, had bleeding several times (ultrasound techs...