Cystic Fibrosis Forum (EXP)

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  1. M

    Low vitamin D, questions

    Vitamin A, D E and K are fat soluble. Cfers don't absorb them very well. That is why the levels are checked every year and why lots of CFers get these vitamins in pills, like AquaDEK's.
  2. M

    Low vitamin D, questions

    Vitamin A, D E and K are fat soluble. Cfers don't absorb them very well. <br />That is why the levels are checked every year and why lots of CFers get these vitamins in pills, like AquaDEK's.
  3. M

    What do you wear in the hostpital?

    When with the slightest possibility, I wear regular clothing. Really don't like walking around in pj's and a robe when in hospital. Will wear pants, a bra, shirt, shoes. Only not when it's not possible, like post some surgeries. Like my tx :-)
  4. M

    What do you wear in the hostpital?

    When with the slightest possibility, I wear regular clothing. Really don't like walking around in pj's and a robe when in hospital. Will wear pants, a bra, shirt, shoes. Only not when it's not possible, like post some surgeries. Like my tx :-)
  5. M

    What do you wear in the hostpital?

    When with the slightest possibility, I wear regular clothing. <br />Really don't like walking around in pj's and a robe when in hospital. Will wear pants, a bra, shirt, shoes. <br />Only not when it's not possible, like post some surgeries. Like my tx :-)
  6. M

    Eflow...what meds can you use with it???

    I have done Pulmozyme, Hypertonic Saline, Colimycine and Combivent with my Eflow. Just have to change the mesh every 3 to 6 months. Just wash it out right after your neb and it won't be clogged up too fast.
  7. M

    Eflow...what meds can you use with it???

    I have done Pulmozyme, Hypertonic Saline, Colimycine and Combivent with my Eflow. Just have to change the mesh every 3 to 6 months. Just wash it out right after your neb and it won't be clogged up too fast.
  8. M

    Eflow...what meds can you use with it???

    I have done <br />Pulmozyme, Hypertonic Saline, Colimycine and Combivent with my Eflow. <br />Just have to change the mesh every 3 to 6 months. <br /> <br />Just wash it out right after your neb and it won't be clogged up too fast.
  9. M

    What to bring to hospital

    Books, dvd's for in your laptop, maybe even cd's for in your laptop, Ipod. Comfortable clothing, but I never have pj's or something like that on during the day. Always just wear my clothes. But maybe also pack a pair or jeans that also fits comfortably when sitting on your bed or something. I...
  10. M

    What to bring to hospital

    Books, dvd's for in your laptop, maybe even cd's for in your laptop, Ipod. Comfortable clothing, but I never have pj's or something like that on during the day. Always just wear my clothes. But maybe also pack a pair or jeans that also fits comfortably when sitting on your bed or something. I...
  11. M

    What to bring to hospital

    Books, dvd's for in your laptop, maybe even cd's for in your laptop, Ipod. <br />Comfortable clothing, but I never have pj's or something like that on during the day. Always just wear my clothes. But maybe also pack a pair or jeans that also fits comfortably when sitting on your bed or...
  12. M

    Prograf Dose

    Sorry, I pay 110 euro's a month for insurance and my insurance payed for surgery and pays for everything in hospital and also pays for my medication at home. Don't know about the costs. Really have no clue how I would be able to afford it all.. without my insurance... So lucky I live in the...
  13. M

    Smoking Zigs & CF

    I had my double lungtransplant in 2006 Post tx my lungfunction never got above 40% and I really felt I needed puffers or something but I never had asthma so we thought that couldn't be it. My donor had smoked, not the years prior to death and not very long but still my donor had smoked...
  14. M

    Smoking Zigs & CF

    I had my double lungtransplant in 2006 Post tx my lungfunction never got above 40% and I really felt I needed puffers or something but I never had asthma so we thought that couldn't be it. My donor had smoked, not the years prior to death and not very long but still my donor had smoked...
  15. M

    Smoking Zigs & CF

    I had my double lungtransplant in 2006 <br />Post tx my lungfunction never got above 40% and I really felt I needed puffers or something but I never had asthma so we thought that couldn't be it. <br />My donor had smoked, not the years prior to death and not very long but still my donor had...
  16. M

    Prograf Dose

    You take Prograf twice a day, on set times as you need to have a constant level. Your level in the first few months up to 6 months post transplant is usually kept at about 12. What dose you need to take to maintain that level varies from person to person, depends on how your body absorbs it. I...
  17. M

    Caught influenza despite flu shot!

    The flu shot gives helps your body grow antibodies against the flu (not all strains though!) You will still catch it but hopefully not develop symptoms, when your body catches it fast. I grew Influenza B two years ago, after having had the flu shot. I am post tx and probably my body can't do...
  18. M

    Caught influenza despite flu shot!

    The flu shot gives helps your body grow antibodies against the flu (not all strains though!) You will still catch it but hopefully not develop symptoms, when your body catches it fast. I grew Influenza B two years ago, after having had the flu shot. I am post tx and probably my body can't do...
  19. M

    Caught influenza despite flu shot!

    The flu shot gives helps your body grow antibodies against the flu (not all strains though!) <br />You will still catch it but hopefully not develop symptoms, when your body catches it fast. <br /> <br />I grew Influenza B two years ago, after having had the flu shot. <br />I am post tx and...
  20. M

    Earthquake/tsunami in Japan

    Fred posted on Facebook, not long after. He is in Osaka in the south, he and his family are safe! I was very glad to to hear :-)
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