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I've got my first appointment there this week (and first clinic appointment in 30 years) and wondered what the clinic staff were like and what to expect? Thanks

Thank you so much for the info.

I was wondering what the differences between pediatric and adult cf clinics were? From what I've read things have changed a lot since I was last at a clinic in the 80's. I know they try and keep CF patients apart now but I remember a big playroom that they threw all the kids into. What else has...

Thank you both! Going to go read that article right now.

I think my mother had a lot to do with convincing my cf doc to drop me, from what I understand she pestered him and questioned the diagnosis for a year or two before he agreed. I went through very bad health my first year of life then it seemed to stabilize through my childhood. I now have a lot...

Yes, I was actually diagnosed and treated until I was10 years old, when I didn't appear as ill as the other children at the clinic it was decided I didn't have it. This was in the mid 1980s, so I have not had genetic testing yet but have an appointment for early September with the local cf...

Since my first post here I have received the original hospital file from 1974. I had 3 sweat tests done that i can find and the results were #1 right arm 62 & 65, left arm 94. #2 right arm 115, 100 left arm 82, 100. #3 right arm 105,195 left arm 97, 97. Is it normal to have such...

I will, thanks. Also call the hospital where I was first diagnosed and found out I can get a copy of my records from back in 1974. It will be an interesting read to see what tests and things they did to come up with the cf diagnosis.

Just wanted to say thank you again to all. My referral went through and I have an appointment with the CF clinic at the beginning of September.

Thanks. I talked to the Doctors assistant at my local clinic today and gave her my history. She said they would definitley be interested in seeing me. I just need a referral from my family Doc. She took down my name and said they would be watching out for the referral to come through. So...

Thank you. I was only 15 in 1989, and the news was not really on my radar. I have been reading a lot the last few days and have picked up a bit, but must admit a lot of the medical info is Greek to me. When I was going to the clinic a lot of info was not discussed in front of me. I remember the...

Thank you both so much for your responses. I have found the phone number for the adult cf clinic in my area and will give them a call next week and look into the testing. Do you happen to know when they started the genetic testing for cf? I was last at the cf clinic in about 1985 and I have no...

Wow, I was looking through the board and came across your post. I was also misdiagnosis at 6 months old in 1974. I just posted http://forum.cysticfibrosis.com/threads/97129-40-year-old-misdiagnoised-as-a-baby . I hope you find some answers. I went to the cf clinic for the first 10 years of my life.

HI, just wondering if anyone knows of a condition LIKE CF? I am now 40 and was misdiagnosed as having CF when I was 6 months old. I got very ill with Staphylococcal pneumonia and my lung collapsed. When I was hospitalized the doctors contacted the hospital I was born in and discovered I had...