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Since it hasn't been mentioned, I will point out that there is an insurance problem with her just drinking the enteral formula. For nearly two years, Micah opted to drink his enteral formula instead of using his g-tube. It worked well and he gained weight that way. His doctors wanted us to...

Since it hasn't been mentioned, I will point out that there is an insurance problem with her just drinking the enteral formula. For nearly two years, Micah opted to drink his enteral formula instead of using his g-tube. It worked well and he gained weight that way. His doctors wanted us to...

Since it hasn't been mentioned, I will point out that there is an insurance problem with her just drinking the enteral formula. For nearly two years, Micah opted to drink his enteral formula instead of using his g-tube. It worked well and he gained weight that way. His doctors wanted us to...

Oops, got distracted. I meant to also say that if you are concerned it's strep, your PCP can fit sick patients in for same day usually, can run a rapid strep and can call and consult with the CF doctor if there are any concerns about treatment.

Oops, got distracted. I meant to also say that if you are concerned it's strep, your PCP can fit sick patients in for same day usually, can run a rapid strep and can call and consult with the CF doctor if there are any concerns about treatment.

Oops, got distracted. I meant to also say that if you are concerned it's strep, your PCP can fit sick patients in for same day usually, can run a rapid strep and can call and consult with the CF doctor if there are any concerns about treatment.

If it is respiratory related, I call the CF clinic. If it is GI related, I call the CF clinic or the liver clinic. If it is liver related, I call the liver clinic. If it is anything else, I call the PCP. There are times we go ages without seeing the PCP simply because there isn't anything...

If it is respiratory related, I call the CF clinic. If it is GI related, I call the CF clinic or the liver clinic. If it is liver related, I call the liver clinic. If it is anything else, I call the PCP. There are times we go ages without seeing the PCP simply because there isn't anything...

If it is respiratory related, I call the CF clinic. If it is GI related, I call the CF clinic or the liver clinic. If it is liver related, I call the liver clinic. If it is anything else, I call the PCP. There are times we go ages without seeing the PCP simply because there isn't anything...

Usually, Micah gets the shot and the rest of the family does not. I homeschool everyone other than Micah, so school is a MUCH bigger risk for him than our house. He's never gotten the flu from the shot before. However, this year, his PCP is saying he doesn't want him to get the flu shot...

Usually, Micah gets the shot and the rest of the family does not. I homeschool everyone other than Micah, so school is a MUCH bigger risk for him than our house. He's never gotten the flu from the shot before. However, this year, his PCP is saying he doesn't want him to get the flu shot...

Usually, Micah gets the shot and the rest of the family does not. I homeschool everyone other than Micah, so school is a MUCH bigger risk for him than our house. He's never gotten the flu from the shot before. However, this year, his PCP is saying he doesn't want him to get the flu shot...

Incomudrox, no one is saying you don't have a right to fight for your life. No one is saying your choice to fight should be disrespected. By the same token, someone else's decision to not fight should also be respected. OP, I don't think anyone can truly know the answer to this for you...

Incomudrox, no one is saying you don't have a right to fight for your life. No one is saying your choice to fight should be disrespected. By the same token, someone else's decision to not fight should also be respected. OP, I don't think anyone can truly know the answer to this for you...

Incomudrox, no one is saying you don't have a right to fight for your life. No one is saying your choice to fight should be disrespected. By the same token, someone else's decision to not fight should also be respected. <br /> <br />OP, I don't think anyone can truly know the answer to this...

Micah was diagnosed with Bipolar at age 6. With rare early childhood onset cases, its hard to identify which type, as all children with Bipolar rapid cycle but might not rapid cycle as adults and this might not truly be type Is. I have never seen his Bipolar be a positive for his CF condition...

Micah was diagnosed with Bipolar at age 6. With rare early childhood onset cases, its hard to identify which type, as all children with Bipolar rapid cycle but might not rapid cycle as adults and this might not truly be type Is. I have never seen his Bipolar be a positive for his CF condition...

Micah was diagnosed with Bipolar at age 6. With rare early childhood onset cases, its hard to identify which type, as all children with Bipolar rapid cycle but might not rapid cycle as adults and this might not truly be type Is. I have never seen his Bipolar be a positive for his CF condition...

Jennifer, Micah is notorious for ripping dressings OFF. Yes, he deaccesses himself, which I would prefer he do with a port than a PICC. We actually ran out of dressing changes this last time. I called the home health agency and demanded more supplies. They got ALL huffy, claimed I was...

Jennifer, Micah is notorious for ripping dressings OFF. Yes, he deaccesses himself, which I would prefer he do with a port than a PICC. We actually ran out of dressing changes this last time. I called the home health agency and demanded more supplies. They got ALL huffy, claimed I was...