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I have heard about the PAN but I think the pharmacy that we would have to use to qualify would be out of network, thus = an even higher percentage we would have to pay. I have some info on it and I will definately look into it, but I just don't have high hopes!

I have heard about the PAN but I think the pharmacy that we would have to use to qualify would be out of network, thus = an even higher percentage we would have to pay. I have some info on it and I will definately look into it, but I just don't have high hopes!

My dd is not in school so I don't know ALL the in's and out's but I know for sure that your child needs to be separated from other cf-ers. The main reason is that you don't know what the other child (or yours as the case may be) is culturing and don't want them to be passing bacterias back and...

My dd is not in school so I don't know ALL the in's and out's but I know for sure that your child needs to be separated from other cf-ers. The main reason is that you don't know what the other child (or yours as the case may be) is culturing and don't want them to be passing bacterias back and...

My dd is not in school so I don't know ALL the in's and out's but I know for sure that your child needs to be separated from other cf-ers. The main reason is that you don't know what the other child (or yours as the case may be) is culturing and don't want them to be passing bacterias back and...

I have been trying to get our parents to go out for the longest time it seems. We have an every other month meeting at our clinic on a Wednesday evening but the attendance is very low. Our social worker has special guests and speakers related to programs, social situations, school, etc and they...

I have been trying to get our parents to go out for the longest time it seems. We have an every other month meeting at our clinic on a Wednesday evening but the attendance is very low. Our social worker has special guests and speakers related to programs, social situations, school, etc and they...

I have been trying to get our parents to go out for the longest time it seems. We have an every other month meeting at our clinic on a Wednesday evening but the attendance is very low. Our social worker has special guests and speakers related to programs, social situations, school, etc and they...

My dd got her vest when she was a little over a year... The magic number at our clinic was 20 inches. She does really well with it, we've never really had any issues. Enzymes- she takes Creon, we started with 5's (they are 6's now) and now she takes the 12's. Our docs write the script for extra...

My dd got her vest when she was a little over a year... The magic number at our clinic was 20 inches. She does really well with it, we've never really had any issues. Enzymes- she takes Creon, we started with 5's (they are 6's now) and now she takes the 12's. Our docs write the script for extra...

My dd got her vest when she was a little over a year... The magic number at our clinic was 20 inches. She does really well with it, we've never really had any issues. Enzymes- she takes Creon, we started with 5's (they are 6's now) and now she takes the 12's. Our docs write the script for extra...

My daughter was in fact one... She tested negative for CF in the newborn screen and then later we found out that she does have CF. The screening doesn't test for 2 genes, it only tests the trypsinogen (IRT) level to see if it's elevated or not. If it's not elevated, nothing else is done. If it's...

My daughter was in fact one... She tested negative for CF in the newborn screen and then later we found out that she does have CF. The screening doesn't test for 2 genes, it only tests the trypsinogen (IRT) level to see if it's elevated or not. If it's not elevated, nothing else is done. If it's...

My daughter was in fact one... She tested negative for CF in the newborn screen and then later we found out that she does have CF. The screening doesn't test for 2 genes, it only tests the trypsinogen (IRT) level to see if it's elevated or not. If it's not elevated, nothing else is done. If it's...

The newborn screening missed my dd's CF... I'm in a different position, I'm the carrier and she's the one w/ CF but I went through a lot of this when I was preggo. My hubby and I found out when we were pregnant that we were both carriers of CF. My dr wanted to an amnio once we found once we were...

The newborn screening missed my dd's CF... I'm in a different position, I'm the carrier and she's the one w/ CF but I went through a lot of this when I was preggo. My hubby and I found out when we were pregnant that we were both carriers of CF. My dr wanted to an amnio once we found once we were...

The newborn screening missed my dd's CF... I'm in a different position, I'm the carrier and she's the one w/ CF but I went through a lot of this when I was preggo. My hubby and I found out when we were pregnant that we were both carriers of CF. My dr wanted to an amnio once we found once we were...

The newborn screening missed my dd's CF... I'm in a different position, I'm the carrier and she's the one w/ CF but I went through a lot of this when I was preggo. My hubby and I found out when we were pregnant that we were both carriers of CF. My dr wanted to an amnio once we found once we were...

The newborn screening missed my dd's CF... <br />I'm in a different position, I'm the carrier and she's the one w/ CF but I went through a lot of this when I was preggo. <br />My hubby and I found out when we were pregnant that we were both carriers of CF. My dr wanted to an amnio once we found...

Our dd started swallowing them without applesauce just after she turned 2. We even transitioned over all her other medicines to pill form once she would swallow the enzymes without applesauce. She even takes Cipro, tylenol and motrin like a champ!