Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. Y

    Port Information for family members...

    I'm glad to read all this good info from people who have experience with ports. I'm on my 4th PICC Line, 3rd this yr. I know it's not alot of PICCs but I was ok health wise till about 2010. Then this yr I seen my health go a bit downhill. I brought up the Port discussion with my Dr. He did agree...
  2. Y

    Port Information for family members...

    I'm glad to read all this good info from people who have experience with ports. I'm on my 4th PICC Line, 3rd this yr. I know it's not alot of PICCs but I was ok health wise till about 2010. Then this yr I seen my health go a bit downhill. I brought up the Port discussion with my Dr. He did agree...
  3. Y

    Port Information for family members...

    I'm glad to read all this good info from people who have experience with ports. I'm on my 4th PICC Line, 3rd this yr. I know it's not alot of PICCs but I was ok health wise till about 2010. Then this yr I seen my health go a bit downhill. I brought up the Port discussion with my Dr. He did agree...
  4. Y

    ABPA help

    I do have APBA also. I just got out of the hospital yesterday. They put me on 200mg of VFEND twice a day. And I was on 40mg of steroids a day at the hospital. The steroids will be tapered down to 10mg a day. I hope the VFEND works. The dr. told me I will be on 10mg of steroids indefinately...
  5. Y

    ABPA help

    I do have APBA also. I just got out of the hospital yesterday. They put me on 200mg of VFEND twice a day. And I was on 40mg of steroids a day at the hospital. The steroids will be tapered down to 10mg a day. I hope the VFEND works. The dr. told me I will be on 10mg of steroids indefinately...
  6. Y

    ABPA help

    I do have APBA also. I just got out of the hospital yesterday. They put me on 200mg of VFEND twice a day. And I was on 40mg of steroids a day at the hospital. The steroids will be tapered down to 10mg a day. I hope the VFEND works. The dr. told me I will be on 10mg of steroids indefinately...
  7. Y

    which antacid

    I have had bad heartburn for 15 yrs now. I take two nexium per day. I feel the exact same way at night, I get Heartburn so bad I feel like I could throw up. The nexium has controlled it really well. But still remember that the side effects of heartburn are still happening even though it's...
  8. Y

    which antacid

    I have had bad heartburn for 15 yrs now. I take two nexium per day. I feel the exact same way at night, I get Heartburn so bad I feel like I could throw up. The nexium has controlled it really well. But still remember that the side effects of heartburn are still happening even though it's...
  9. Y

    which antacid

    I have had bad heartburn for 15 yrs now. I take two nexium per day. I feel the exact same way at night, I get Heartburn so bad I feel like I could throw up. The nexium has controlled it really well. But still remember that the side effects of heartburn are still happening even though it's...
  10. Y

    Dr can't figure out what's wrong. I'm an enigma

    I have not tried NAC yet. I'll have to look that up. Thanks for your input. It's great talking to others with cf and extra stuff to go with it. Even though we're not the experts I think we know things better than the dr's sometimes because it's our body and we worry a lot more than they do. In...
  11. Y

    Dr can't figure out what's wrong. I'm an enigma

    I have not tried NAC yet. I'll have to look that up. Thanks for your input. It's great talking to others with cf and extra stuff to go with it. Even though we're not the experts I think we know things better than the dr's sometimes because it's our body and we worry a lot more than they do. In...
  12. Y

    Dr can't figure out what's wrong. I'm an enigma

    I have not tried NAC yet. I'll have to look that up. Thanks for your input. It's great talking to others with cf and extra stuff to go with it. Even though we're not the experts I think we know things better than the dr's sometimes because it's our body and we worry a lot more than they do. In...
  13. Y

    Dr can't figure out what's wrong. I'm an enigma

    I mentioned that to the the one dr in early june and they couldn't say yes or no to that. I just got the blood work results online. It shows the ige level high again. It was high in june too. The aspergillus level was high too in blood work along with a few other levels. My wife and I do think...
  14. Y

    Dr can't figure out what's wrong. I'm an enigma

    I mentioned that to the the one dr in early june and they couldn't say yes or no to that. I just got the blood work results online. It shows the ige level high again. It was high in june too. The aspergillus level was high too in blood work along with a few other levels. My wife and I do think...
  15. Y

    Dr can't figure out what's wrong. I'm an enigma

    I mentioned that to the the one dr in early june and they couldn't say yes or no to that. I just got the blood work results online. It shows the ige level high again. It was high in june too. The aspergillus level was high too in blood work along with a few other levels. My wife and I do think...
  16. Y

    Dr can't figure out what's wrong. I'm an enigma

    For about 7 months I keep getting asthma like symptoms. increased wheezing, coughing, shortness of breath. Of course all of these are associated with CF too but the difference is my PFT's have been pretty much stable. Not wonderful but stable. I was in the hospital in May for 5 days and did home...
  17. Y

    Dr can't figure out what's wrong. I'm an enigma

    For about 7 months I keep getting asthma like symptoms. increased wheezing, coughing, shortness of breath. Of course all of these are associated with CF too but the difference is my PFT's have been pretty much stable. Not wonderful but stable. I was in the hospital in May for 5 days and did home...
  18. Y

    Dr can't figure out what's wrong. I'm an enigma

    For about 7 months I keep getting asthma like symptoms. increased wheezing, coughing, shortness of breath. Of course all of these are associated with CF too but the difference is my PFT's have been pretty much stable. Not wonderful but stable. I was in the hospital in May for 5 days and did home...
  19. Y

    Check out this app TONIC that was created for self care that was inspired by my day

    When will that be available for the Android App?
  20. Y

    Check out this app TONIC that was created for self care that was inspired by my day

    When will that be available for the Android App?
Top