Cystic Fibrosis Forum (EXP)

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  1. M

    Pancreatic enzymes

    Liza, we have BCBS as well and that Creon is the only "preferred" enzyme per our policy. However, Creon did not work at all with Max and I wrote an appeals letter to them outlining the ill effects it was having on him, as well as the long-term health ramifications of using an enzyme that simply...
  2. M

    Pancreatic enzymes

    Liza, we have BCBS as well and that Creon is the only "preferred" enzyme per our policy. However, Creon did not work at all with Max and I wrote an appeals letter to them outlining the ill effects it was having on him, as well as the long-term health ramifications of using an enzyme that simply...
  3. M

    nutrition packed Halloween treat

    I agree. Sounds great & nutritious as well.
  4. M

    nutrition packed Halloween treat

    I agree. Sounds great & nutritious as well.
  5. M

    nutrition packed Halloween treat

    I agree. Sounds great & nutritious as well.
  6. M

    Am I a fool?

    Before adding prevacid, Max would vomit several times a week, which included a cough that would start while he was sleeping and ended with him vomiting in his bed - at which time the coughing would stop. After adding prevacid, his vomiting has stopped. Due to costs (out-of-pocket) $260/3 month...
  7. M

    Am I a fool?

    Before adding prevacid, Max would vomit several times a week, which included a cough that would start while he was sleeping and ended with him vomiting in his bed - at which time the coughing would stop. After adding prevacid, his vomiting has stopped. Due to costs (out-of-pocket) $260/3 month...
  8. M

    Am I a fool?

    Before adding prevacid, Max would vomit several times a week, which included a cough that would start while he was sleeping and ended with him vomiting in his bed - at which time the coughing would stop. After adding prevacid, his vomiting has stopped. Due to costs (out-of-pocket) $260/3 month...
  9. M

    Creon -- Solvay Vitamins & Beverages

    Max actually liked the canned cib. They were really handy to take on the go (vacation, lunch boxes, etc). He was only on Creon for one month and I was disappointed that Zenpep didn't offer them too - they have a variety of "shakes" but they are frozen - luckily Max likes those too.
  10. M

    Creon -- Solvay Vitamins & Beverages

    Max actually liked the canned cib. They were really handy to take on the go (vacation, lunch boxes, etc). He was only on Creon for one month and I was disappointed that Zenpep didn't offer them too - they have a variety of "shakes" but they are frozen - luckily Max likes those too.
  11. M

    Creon -- Solvay Vitamins & Beverages

    Max actually liked the canned cib. They were really handy to take on the go (vacation, lunch boxes, etc). He was only on Creon for one month and I was disappointed that Zenpep didn't offer them too - they have a variety of "shakes" but they are frozen - luckily Max likes those too.
  12. M

    high blood sugar in the little man

    I totally agree with trying a new enzyme. Max had been on Ultrase 12 (3 per meal). When it was pulled off the market, we tried Creon (12). We started with 3 per meal, at which time Max complained almost daily of stomach aches and began having 3-4 loose, greasy diapers per day. We upped the...
  13. M

    high blood sugar in the little man

    I totally agree with trying a new enzyme. Max had been on Ultrase 12 (3 per meal). When it was pulled off the market, we tried Creon (12). We started with 3 per meal, at which time Max complained almost daily of stomach aches and began having 3-4 loose, greasy diapers per day. We upped the...
  14. M

    high blood sugar in the little man

    I totally agree with trying a new enzyme. Max had been on Ultrase 12 (3 per meal). When it was pulled off the market, we tried Creon (12). We started with 3 per meal, at which time Max complained almost daily of stomach aches and began having 3-4 loose, greasy diapers per day. We upped the...
  15. M

    Just have to sceam "MY BABY IS 3"

    Just have to sceam Yeah, 3 years old. My little guy will be there next month as well!!!
  16. M

    Just have to sceam "MY BABY IS 3"

    Just have to sceam Yeah, 3 years old. My little guy will be there next month as well!!!
  17. M

    Just have to sceam "MY BABY IS 3"

    Just have to sceam Yeah, 3 years old. My little guy will be there next month as well!!!
  18. M

    Idea for fundraiser Silly Bandz?

    Wonderful idea. I like the purple awareness ribbon as well. They have text ones as well, could do "CURE", "BREATHE", etc.
  19. M

    Idea for fundraiser Silly Bandz?

    Wonderful idea. I like the purple awareness ribbon as well. They have text ones as well, could do "CURE", "BREATHE", etc.
  20. M

    Idea for fundraiser Silly Bandz?

    Wonderful idea. I like the purple awareness ribbon as well. They have text ones as well, could do "CURE", "BREATHE", etc.
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