Cystic Fibrosis Forum (EXP)

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  1. J

    Smile, I need your pictures!

    I'll send you a pic of my JJ, He's a ham and love the camera so it will be hard to pick out the best lol Is there anyway you can post it on here so we can all see it? That would be so cool!
  2. J

    Smile, I need your pictures!

    I'll send you a pic of my JJ, He's a ham and love the camera so it will be hard to pick out the best lol Is there anyway you can post it on here so we can all see it? That would be so cool!
  3. J

    GREAT NEWS For JJ

    Well I'm so proud of my son JJ. We had a Dr. appt yesterday, and he gained 4LBS!! This is the most he has gained in a while. He is drinking his scandi shakes like mad! and also he has his peptaman at night. and his PFT's are going up as well!! We have been having a problem with him doing his...
  4. J

    GREAT NEWS For JJ

    Well I'm so proud of my son JJ. We had a Dr. appt yesterday, and he gained 4LBS!! This is the most he has gained in a while. He is drinking his scandi shakes like mad! and also he has his peptaman at night. and his PFT's are going up as well!! We have been having a problem with him doing his...
  5. J

    GREAT NEWS For JJ

    Well I'm so proud of my son JJ. We had a Dr. appt yesterday, and he gained 4LBS!! This is the most he has gained in a while. He is drinking his scandi shakes like mad! and also he has his peptaman at night. and his PFT's are going up as well!! We have been having a problem with him doing his...
  6. J

    Abortions

    I am pro choice for other people but Pro life for myself. 6 years ago I had my tubes tied after I had my 3rd child. A year and a 1/2 later to my surprise I got pregnant! I was having cramping and went to the emergency room, where they sent me to have an abortion because it was etopic. I was...
  7. J

    Abortions

    I am pro choice for other people but Pro life for myself. 6 years ago I had my tubes tied after I had my 3rd child. A year and a 1/2 later to my surprise I got pregnant! I was having cramping and went to the emergency room, where they sent me to have an abortion because it was etopic. I was...
  8. J

    Abortions

    I am pro choice for other people but Pro life for myself. 6 years ago I had my tubes tied after I had my 3rd child. A year and a 1/2 later to my surprise I got pregnant! I was having cramping and went to the emergency room, where they sent me to have an abortion because it was etopic. I was...
  9. J

    supplements

    My son has 4 scadi shakes a day! 2 at school and 2 at home. If you want to make banana scandi shake, in a blender add a vanilla packet, milk(I use a little extra) 1 banana, 1 cup of vanilla icecream. I make these with my son, he gobbles it up, and has 385 more calories than just a regular...
  10. J

    supplements

    My son has 4 scadi shakes a day! 2 at school and 2 at home. If you want to make banana scandi shake, in a blender add a vanilla packet, milk(I use a little extra) 1 banana, 1 cup of vanilla icecream. I make these with my son, he gobbles it up, and has 385 more calories than just a regular...
  11. J

    supplements

    My son has 4 scadi shakes a day! 2 at school and 2 at home. If you want to make banana scandi shake, in a blender add a vanilla packet, milk(I use a little extra) 1 banana, 1 cup of vanilla icecream. I make these with my son, he gobbles it up, and has 385 more calories than just a regular...
  12. J

    How can I get my son to gain more weight

    My son has a gtube, he hated it at first and now it's just there, he doesnt even think about it until bedtime. He has the healthiest appitite I've ever seen, He can eat more than a grown man! But he runs so much can't keep that kid sitting down for more than 5 minutes at a time! We put the...
  13. J

    My son gets Embarassing Smells

    We took a trip to Boston this past weekend and OMG I had to stop to a gas station and get an air freshner! I just thank god he sits in the back of the mini-van and I can open those windows a crack. We stopped to a rest stop so he could go to the bathroom my husband was in there with him while...
  14. J

    My son needs a G-Tube

    He is gaining some weight I can see it! He looks so much better it was the best thing I think we could have done. The only problem we are having is the top keeps popping open, but he just puts some tape over the top and it won't do that, hopefully soon the Dr. will put the button in instead so...
  15. J

    504 ideas

    I never knew of a 504. How do I get one for my son w/Cf? He has missed school for surgery and I got a letter in the mail, stating if he misses anymore days they will take legal proceedures. Even though I informed the school of his surgery months in advance. It would help me out if anyone can...
  16. J

    Sad news

    I'm very sorry to hear of your loss, I didn't have a miscarriage but a tubal pregnancy so I know what you are going through. Any loss of a child is devistating. I have a tattoo for all my children with their name and I have one tattoo of a rose without a name, for that child. That is the way...
  17. J

    He ruined my Christmas already!

    He sounds like my father! He always made the holidays not worth celebrating. now that i'm older and have my own family I'm starting to get into christmas and thanksgiving. My mother was married to him for 26 years and he made her life HELL! so about 6 years ago she divorced him and now she is...
  18. J

    coping with daughter having CF

    I can so realte to you my son is 9 and has CF. We found out when he was about 2 monts old. At first I didn't understand and when I read more and more about it I started getting depressed. I've been taking it day by day and most days are great but when he gets sick its bad. I try to treat him...
  19. J

    Dr Phil

    My sister watched the segment (she is a huge Dr. Phil fan) and called me last night asking all kinds of questions. She told me that her and her husband are going to make sure they sign up to be organ donors, and their friends. She lives in TX so far away and she has never seen my son sick at...
  20. J

    My son needs a G-Tube

    He isn't too happy about that! boys will be boys. He had a mishap at school today, his tube came open and liquid came out getting his clothes all wet. A teacher noticed and told him, he checked and the cap at the end had popped open. They gave him some new clothes to put on, and he was fine...
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