Cystic Fibrosis Forum (EXP)

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  1. S

    Results Back

    Steve will be able to answer your question more accurately. I am not sure what the norm is, but yes before you definatley say your child does not have CF it would be important to know that they also checked for deletions. For us it was a little over 4 weeks from when Ambry recieved our sample...
  2. S

    Results Back

    Steve will be able to answer your question more accurately. I am not sure what the norm is, but yes before you definatley say your child does not have CF it would be important to know that they also checked for deletions. For us it was a little over 4 weeks from when Ambry recieved our sample...
  3. S

    Results Back

    Steve will be able to answer your question more accurately. I am not sure what the norm is, but yes before you definatley say your child does not have CF it would be important to know that they also checked for deletions. For us it was a little over 4 weeks from when Ambry recieved our sample...
  4. S

    Results Back

    Steve will be able to answer your question more accurately. I am not sure what the norm is, but yes before you definatley say your child does not have CF it would be important to know that they also checked for deletions. For us it was a little over 4 weeks from when Ambry recieved our sample...
  5. S

    Results Back

    Steve will be able to answer your question more accurately. I am not sure what the norm is, but yes before you definatley say your child does not have CF it would be important to know that they also checked for deletions. <br /> <br />For us it was a little over 4 weeks from when Ambry...
  6. S

    Results Back

    So last night I recieved a call from our CF nurse. I of course didn't answer the call so I waited nervously until the morning. I was told that there were no mutations found and something about 7T/7T poly something? When I asked if duplication and deletions were done I was told they were and...
  7. S

    Results Back

    So last night I recieved a call from our CF nurse. I of course didn't answer the call so I waited nervously until the morning. I was told that there were no mutations found and something about 7T/7T poly something? When I asked if duplication and deletions were done I was told they were and...
  8. S

    Results Back

    So last night I recieved a call from our CF nurse. I of course didn't answer the call so I waited nervously until the morning. I was told that there were no mutations found and something about 7T/7T poly something? When I asked if duplication and deletions were done I was told they were and...
  9. S

    Results Back

    So last night I recieved a call from our CF nurse. I of course didn't answer the call so I waited nervously until the morning. I was told that there were no mutations found and something about 7T/7T poly something? When I asked if duplication and deletions were done I was told they were and...
  10. S

    Results Back

    So last night I recieved a call from our CF nurse. I of course didn't answer the call so I waited nervously until the morning. <br /> <br />I was told that there were no mutations found and something about 7T/7T poly something? When I asked if duplication and deletions were done I was told...
  11. S

    Welcome Ambry Genetics

    I think we have completed all of the paperwork and my primary physician was going to fax the information this afternoon. Could you please let me know, or who I can contact to be sure it was done correctly. Thanks, Sandy
  12. S

    Welcome Ambry Genetics

    Steve, I received the results from my dd's testing at Ambry. I was told they did the deletion and duplication testing with her sample. Is it possible for you to tell me if this is true or not? I also have a copy of the report that recommends adding these, so I am confused. Also, if it has...
  13. S

    Red Man Syndrome

    Jen, Have you tried tylenol at all? We generally use benadryl with tyleonl for redmans. Also, would you be able to take even a small dose of benadryl. Sometimes a little goes a long way. I hope you figure it out. Sandy
  14. S

    Red Man Syndrome

    Jen, Have you tried tylenol at all? We generally use benadryl with tyleonl for redmans. Also, would you be able to take even a small dose of benadryl. Sometimes a little goes a long way. I hope you figure it out. Sandy
  15. S

    Red Man Syndrome

    Jen, Have you tried tylenol at all? We generally use benadryl with tyleonl for redmans. Also, would you be able to take even a small dose of benadryl. Sometimes a little goes a long way. I hope you figure it out. Sandy
  16. S

    Red Man Syndrome

    Jen, Have you tried tylenol at all? We generally use benadryl with tyleonl for redmans. Also, would you be able to take even a small dose of benadryl. Sometimes a little goes a long way. I hope you figure it out. Sandy
  17. S

    Red Man Syndrome

    Jen, <br />Have you tried tylenol at all? We generally use benadryl with tyleonl for redmans. Also, would you be able to take even a small dose of benadryl. Sometimes a little goes a long way. I hope you figure it out. <br /> <br />Sandy <br />
  18. S

    Is this answer?

    Good luck with all of the testing. I will be praying for you. Keep us posted!
  19. S

    Is this answer?

    Good luck with all of the testing. I will be praying for you. Keep us posted!
  20. S

    Is this answer?

    Good luck with all of the testing. I will be praying for you. Keep us posted!
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