Cystic Fibrosis Forum (EXP)

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  1. S

    Chronic sinusitis--could it possibly be CF?

    Hi! I have a DD who is 10 and has gone through all you are describing. We also have had her ruled out for cilliary dyskenesia (sp?) The only thing that has been remarkable for her is her sweat chloride test, that came back 38- high normal. We had genetic testing done and I didn't know...
  2. S

    Chronic sinusitis--could it possibly be CF?

    Hi! I have a DD who is 10 and has gone through all you are describing. We also have had her ruled out for cilliary dyskenesia (sp?) The only thing that has been remarkable for her is her sweat chloride test, that came back 38- high normal. We had genetic testing done and I didn't know...
  3. S

    Chronic sinusitis--could it possibly be CF?

    Hi! I have a DD who is 10 and has gone through all you are describing. We also have had her ruled out for cilliary dyskenesia (sp?) The only thing that has been remarkable for her is her sweat chloride test, that came back 38- high normal. We had genetic testing done and I didn't know...
  4. S

    Chronic sinusitis--could it possibly be CF?

    Hi! I have a DD who is 10 and has gone through all you are describing. We also have had her ruled out for cilliary dyskenesia (sp?) The only thing that has been remarkable for her is her sweat chloride test, that came back 38- high normal. We had genetic testing done and I didn't know...
  5. S

    Chronic sinusitis--could it possibly be CF?

    Hi! I have a DD who is 10 and has gone through all you are describing. We also have had her ruled out for cilliary dyskenesia (sp?) The only thing that has been remarkable for her is her sweat chloride test, that came back 38- high normal. <br /> <br />We had genetic testing done and I...
  6. S

    feeding pump emergency

    Where I work we have many people with the same problem, and I had never seen the attachment thingie. We use silk medical tape, but any flexible tape will do in a pinch. I like the duct tape idea, I bet that idea didn't make the 1001 uses for duct tape <img...
  7. S

    feeding pump emergency

    Where I work we have many people with the same problem, and I had never seen the attachment thingie. We use silk medical tape, but any flexible tape will do in a pinch. I like the duct tape idea, I bet that idea didn't make the 1001 uses for duct tape <img...
  8. S

    feeding pump emergency

    Where I work we have many people with the same problem, and I had never seen the attachment thingie. We use silk medical tape, but any flexible tape will do in a pinch. I like the duct tape idea, I bet that idea didn't make the 1001 uses for duct tape <img...
  9. S

    feeding pump emergency

    Where I work we have many people with the same problem, and I had never seen the attachment thingie. We use silk medical tape, but any flexible tape will do in a pinch. I like the duct tape idea, I bet that idea didn't make the 1001 uses for duct tape <img...
  10. S

    feeding pump emergency

    Where I work we have many people with the same problem, and I had never seen the attachment thingie. We use silk medical tape, but any flexible tape will do in a pinch. <br /> <br />I like the duct tape idea, I bet that idea didn't make the 1001 uses for duct tape <img...
  11. S

    sweat teat results

    I have to say hurray for you that you were strong enough to push back and get them to do the genetic testing. I have been "fighting" for a few months now to get my daughter tested and it can be very tiresome. There is definately a population of medical professionals that do not understand/...
  12. S

    sweat teat results

    I have to say hurray for you that you were strong enough to push back and get them to do the genetic testing. I have been "fighting" for a few months now to get my daughter tested and it can be very tiresome. There is definately a population of medical professionals that do not understand/...
  13. S

    sweat teat results

    I have to say hurray for you that you were strong enough to push back and get them to do the genetic testing. I have been "fighting" for a few months now to get my daughter tested and it can be very tiresome. There is definately a population of medical professionals that do not understand/...
  14. S

    sweat teat results

    I have to say hurray for you that you were strong enough to push back and get them to do the genetic testing. I have been "fighting" for a few months now to get my daughter tested and it can be very tiresome. There is definately a population of medical professionals that do not understand/...
  15. S

    sweat teat results

    I have to say hurray for you that you were strong enough to push back and get them to do the genetic testing. I have been "fighting" for a few months now to get my daughter tested and it can be very tiresome. There is definately a population of medical professionals that do not understand/...
  16. S

    belly pain questions

    Thanks for your replies. We tried the lactose tablets, fiber thearapy, antacids, probiotics, all of which have not made a difference for her. We still use antacids occasionally for several weeks at a time, and probiotics. I have always hoped we would figure this out, but it is looking like it...
  17. S

    belly pain questions

    Thanks for your replies. We tried the lactose tablets, fiber thearapy, antacids, probiotics, all of which have not made a difference for her. We still use antacids occasionally for several weeks at a time, and probiotics. I have always hoped we would figure this out, but it is looking like it...
  18. S

    belly pain questions

    Thanks for your replies. We tried the lactose tablets, fiber thearapy, antacids, probiotics, all of which have not made a difference for her. We still use antacids occasionally for several weeks at a time, and probiotics. I have always hoped we would figure this out, but it is looking like it...
  19. S

    belly pain questions

    Thanks for your replies. We tried the lactose tablets, fiber thearapy, antacids, probiotics, all of which have not made a difference for her. We still use antacids occasionally for several weeks at a time, and probiotics. I have always hoped we would figure this out, but it is looking like it...
  20. S

    belly pain questions

    Thanks for your replies. We tried the lactose tablets, fiber thearapy, antacids, probiotics, all of which have not made a difference for her. We still use antacids occasionally for several weeks at a time, and probiotics. I have always hoped we would figure this out, but it is looking like it...
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