Cystic Fibrosis Forum (EXP)

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  1. S

    My CF sister...

    My heart aches for you. I have 2 daughters who we are waiting to find out if they have CF or not and thinking of them not being able to be as close as they are now breaks my heart. I am sooooo sorry that you have do deal with this, you will be in my prayers. Sandy
  2. S

    My CF sister...

    My heart aches for you. I have 2 daughters who we are waiting to find out if they have CF or not and thinking of them not being able to be as close as they are now breaks my heart. I am sooooo sorry that you have do deal with this, you will be in my prayers. Sandy
  3. S

    My CF sister...

    My heart aches for you. I have 2 daughters who we are waiting to find out if they have CF or not and thinking of them not being able to be as close as they are now breaks my heart. I am sooooo sorry that you have do deal with this, you will be in my prayers. Sandy
  4. S

    My CF sister...

    My heart aches for you. I have 2 daughters who we are waiting to find out if they have CF or not and thinking of them not being able to be as close as they are now breaks my heart. I am sooooo sorry that you have do deal with this, you will be in my prayers. Sandy
  5. S

    My CF sister...

    My heart aches for you. I have 2 daughters who we are waiting to find out if they have CF or not and thinking of them not being able to be as close as they are now breaks my heart. I am sooooo sorry that you have do deal with this, you will be in my prayers. <br /> <br />Sandy
  6. S

    Welcome Ambry Genetics

    Steve, I am trying to have my daughter tested genetically. They have already done the genzyme panel in which they found no mutations. My pediatrician would like to order the test but is unsure how to order it. Can you tell me specifically what they need to write on the order so that it is...
  7. S

    Cepacia on same floor as non- cepacia patients

    At our hospital we do not seperate. All CFers are on the same floor (birth to 21 years). We have a patient or two that cultures cepacia. ANYONE (doctors, nurses, rt's, enviornmental services) who goes into a patient room must gown, glove and mask on entering and wash hands upon exiting the...
  8. S

    Cepacia on same floor as non- cepacia patients

    At our hospital we do not seperate. All CFers are on the same floor (birth to 21 years). We have a patient or two that cultures cepacia. ANYONE (doctors, nurses, rt's, enviornmental services) who goes into a patient room must gown, glove and mask on entering and wash hands upon exiting the...
  9. S

    Cepacia on same floor as non- cepacia patients

    At our hospital we do not seperate. All CFers are on the same floor (birth to 21 years). We have a patient or two that cultures cepacia. ANYONE (doctors, nurses, rt's, enviornmental services) who goes into a patient room must gown, glove and mask on entering and wash hands upon exiting the...
  10. S

    Cepacia on same floor as non- cepacia patients

    At our hospital we do not seperate. All CFers are on the same floor (birth to 21 years). We have a patient or two that cultures cepacia. ANYONE (doctors, nurses, rt's, enviornmental services) who goes into a patient room must gown, glove and mask on entering and wash hands upon exiting the...
  11. S

    Cepacia on same floor as non- cepacia patients

    At our hospital we do not seperate. All CFers are on the same floor (birth to 21 years). We have a patient or two that cultures cepacia. ANYONE (doctors, nurses, rt's, enviornmental services) who goes into a patient room must gown, glove and mask on entering and wash hands upon exiting the...
  12. S

    Frustration with a friend'

    I am around alot of CFers and am wondering sure that I have been an idiot at times (not purposefuly). Can any of you tell me what kinds of things are appropriate to say or talk about with someone who you would know has the disease. What types of people make you feel encouraged, or okay with...
  13. S

    Frustration with a friend'

    I am around alot of CFers and am wondering sure that I have been an idiot at times (not purposefuly). Can any of you tell me what kinds of things are appropriate to say or talk about with someone who you would know has the disease. What types of people make you feel encouraged, or okay with...
  14. S

    Frustration with a friend'

    I am around alot of CFers and am wondering sure that I have been an idiot at times (not purposefuly). Can any of you tell me what kinds of things are appropriate to say or talk about with someone who you would know has the disease. What types of people make you feel encouraged, or okay with...
  15. S

    Frustration with a friend'

    I am around alot of CFers and am wondering sure that I have been an idiot at times (not purposefuly). Can any of you tell me what kinds of things are appropriate to say or talk about with someone who you would know has the disease. What types of people make you feel encouraged, or okay with...
  16. S

    Frustration with a friend'

    I am around alot of CFers and am wondering sure that I have been an idiot at times (not purposefuly). Can any of you tell me what kinds of things are appropriate to say or talk about with someone who you would know has the disease. What types of people make you feel encouraged, or okay with...
  17. S

    Fast breathing

    Sarah, I have sent you a pm. Sandy
  18. S

    Fast breathing

    Sarah, I have sent you a pm. Sandy
  19. S

    Fast breathing

    Sarah, I have sent you a pm. Sandy
  20. S

    Fast breathing

    Sarah, I have sent you a pm. Sandy
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