Cystic Fibrosis Forum (EXP)

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    Husband with CF, declining health,lungs functioning at less than 20%,what can be done

    Hi Shelby, It is important to keep his glutathione levels optimised. Stress really depletes our glutathione levels, allowing the inflammation/infection cycle to take hold. It is a vicious circle as the chronic infection lowers glutathione further. Check my page for more info. Also, has he tried...
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    On ivs 10 times so far this year..what now...

    Hi Tisha, Great idea about the lavender oil! Lavender oil is a potent antibacterial so I can see that it would be beneficial! Very interesting too about the hawthorn - how do you take it? Thanks!
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    On ivs 10 times so far this year..what now...

    NAC (N acetyl cysteine) works by increasing our glutathione levels, which is a good strategy because glutathione is known to be severely depleted in cystic fibrosis, leading to the cycle of chronic inflammation and infection. I have been doing a lot of research into glutathione and discovered a...
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    Tips for keeping energy up during IV's?

    Increase your energy The best supplement I have found for increasing energy levels is Cellgevity. It works by increasing your glutathione levels, which will help you to fight off the infection and reduce inflammation too. Check out: www.Cellgevity4CF.com
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    On ivs 10 times so far this year..what now...

    Glutathione Hi, sorry to hear about the constant I-V's. That can't be much fun. I had a phase a few years ago where I needed lots of i-v's (including vanc for MRSA) and constant oral antibiotics and then I had a serious bout of pneumonia. I also had an immune system 'meltdown' with systemic...
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    vegan diet-cystic fibrosis

    Top quality nutrition is vital for CF CF patients are often encouraged to eat junk food - cola, crisps, burgers, etc - anything to get the calories in it seems! However a diet full of transfats, sugar and high fructose corn syrup will just play havoc with the liver and pancreas, leading...
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    CF and Healthy

    Tips and recipes to stay well with CF! www.cfandhealthy.blogspot.com
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    Is knowing and reading other CF'ers stories better or worse?

    It's not all hopeless. I agree that a lot of the stories we hear about CF people tend to be on the negative side. But there are lots of people living normal healthy lives with CF. I am 37 and was diagnosed at age 3. I am lucky to lead a normal life and have devised some strategies to keep...
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    CF: Accepting and Living Your Life with CF

    Greetings from Australia! Just a note to say I have been greatly enjoying this forum and reading about other people's experiences with CF. Thanks!
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    To all the green smoothies drinkers...and anyone with pseudo!!

    I agree that having CF is not a licence to eat junk food! We need top quality nutrition and lots of green vegetables to help to alkalise the body. An acidic body will encourage bacterial infection. I have a healthy green juice every morning - check out my video for the recipe...
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    Alternative treatments for MRSA

    Apparently vitamin B3 in high doses can help the body fight off MRSA. Read the full article here http://www.cfandhealthy.blogspot.com.au/
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    Trying to rid PA!

    Did you know that horseradish has powerful anti-pseudomonas properties? Garlic is also a powerful anti bacterial and anti viral herb. I have had PA for nearly 30 years and am still very healthy with almost normal lung function. I find nebulised hypertonic saline invaluable to keeping my...
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    Newborn just diagnosed and I M FREAKIN OUT

    There is hope - I am 37 years old, have CF and very healthy. When I was born the outlook was very bleak, but thankfully my mum was a nurse and kept me well. I had a very normal childhood and was never made to feel different, which I am very grateful for. Airway clearance was always a game...
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    Europeans vote down dry powder mannitol

    Hypertonic saline (6%) is a very effective natural solution for mucus clearance.
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    HELP! My 10yr old is refusing to do airway clearance

    Hi, I am 37 years old and also have CF. When I was a child I hated doing physio, so instead my parents would tickle me (very effective and fun!), get my brother to chase me and run races (also very effective!), blowing up balloons and bouncing on the trampoline. Singing is also a fantastic way...
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    Possible new way to fight lung infections

    This is exciting news. I will research this topic further. Check out my blog for other ways to beat the bacteria: http://cfandhealthy.blogspot.com.au/
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    20 Weeks Pregnant and found out baby has DDF508 CF - What to expect, and what to do?

    From a 37 year old with cystic fibrosis (delta 508) When I was born 37 years ago, my parents were given a very bleak outlook for my prognosis. Despite this, I have now reached the age of 37 and remain very healthy. I have a degree in Physiology and work as a medical imaging specialist. I lead a...
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