Cystic Fibrosis Forum (EXP)

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  1. G

    Happy Birthday Grsswspr

    I just had the best birthday ever! <img src="i/expressions/beer.gif" border="0"><img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/brokenheart.gif" border="0"><img src="i/expressions/camera.gif" border="0"><img src="i/expressions/clock.gif" border="0"><img...
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    Haemophilus

    Does anyone know what this cf virus is all about? It is the latest culture result from our last clinic. Haemophilus influenza on Airway Epithelia
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    Denied Pulmozyme

    I know it's expensive but isn't insurance to provide medication for illness? I don't understand being denied a medication like Pulmozyme that is the only one of it's kind that can break up dna in the lungs for cf. I was shocked when I heard that it cost about $1700.00 per month. WOW! Anyone...
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    Personality Test

    Take this test. Be honest! <a target=_blank class=ftalternatingbarlinklarge href="http://www.4degreez.com/misc/personality_disorder_test.mv">http://www.4degreez.com/misc/p...ality_disorder_test.mv</a>
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    Fatal inheritance

    I came across this site out of curiosity when I was trying to figure out where my genetic mutations came from. <a target=_blank class=ftalternatingbarlinklarge href="http://www.human-nature.com/science-as-culture/walker.html">http://www.human-nature.com/sc...as-culture/walker.html</a>
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    Tracking family CF

    My parents have never been tested but I know I am a carrier of one gene mutation and my brother is a carrier of another(V754M). My daughter is positive with D-F508 and S492F. As for the rest of my family (sisters, aunts, neices, nefews and cousins) don't think they should (or don't want to)...
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    Sit with me

    When it's time to do vest therapy, the first thing I hear is will you sit with me? Most of the time that's ok, no problem. It is difficult to sit through every therapy and it makes me feel bad when I can't. Sometimes it even leads to a meltdown because I cannot sit through the full 30 mins...
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    Ab pain and the vest

    Does anyone know what might cause abdominal pain (cramps) during vest therapy?
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    Mild CF?

    Help me out here.  I have an 8 year old with a mild form of CF.  So far the only symptom has been polyps and slightly underweight.  Does mild CF turn into more severe at some point or does it pretty much stay the same?  Can the lung problems start to occur at  a latter date?  I'm wondering what...
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