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Hi, just saw this thread. S1235R is the only known mutation my 16 year old ds has. He has moderate PI, asthma and allergies. We are trying to get him into a study for nasal potential difference testing as we were told this is the gold standard for atypical cf. <br /> <br /> Two different...

Hi, I don't know anything about the culture. But I do understand it's very hard when they don't want to do what's necessary for their health. My ds, 16, started creon and aquadeks and extra vitamins a few months ago. He doesn't mind the aquadeks and vitamins too much as I think he can tell...

Hi, I don't know anything about the culture. But I do understand it's very hard when they don't want to do what's necessary for their health. My ds, 16, started creon and aquadeks and extra vitamins a few months ago. He doesn't mind the aquadeks and vitamins too much as I think he can tell...

Hi, I don't know anything about the culture. But I do understand it's very hard when they don't want to do what's necessary for their health. My ds, 16, started creon and aquadeks and extra vitamins a few months ago. He doesn't mind the aquadeks and vitamins too much as I think he can tell...

Thanks tacos, I think we'll try to get in to Birmingham this summer to have this done. It's great that you get the results and don't have to wait for them.<img src="i/expressions/face-icon-small-cool.gif" border="0">

Thanks tacos, I think we'll try to get in to Birmingham this summer to have this done. It's great that you get the results and don't have to wait for them.<img src="i/expressions/face-icon-small-cool.gif" border="0">

Thanks tacos, I think we'll try to get in to Birmingham this summer to have this done. It's great that you get the results and don't have to wait for them.<img src="i/expressions/face-icon-small-cool.gif" border="0">

Thanks everyone for all the info.<img src="i/expressions/face-icon-small-happy.gif" border="0"> Our sons are 16 and 12 so hopefully won't have any problems with the test. We're in TN and Birmingham is actually closest to us, so good to know that info Taco. Can you tell me if they gave you...

Thanks everyone for all the info.<img src="i/expressions/face-icon-small-happy.gif" border="0"> Our sons are 16 and 12 so hopefully won't have any problems with the test. We're in TN and Birmingham is actually closest to us, so good to know that info Taco. Can you tell me if they gave you...

Thanks everyone for all the info.<img src="i/expressions/face-icon-small-happy.gif" border="0"> <br /> <br />Our sons are 16 and 12 so hopefully won't have any problems with the test. <br /> <br /> We're in TN and Birmingham is actually closest to us, so good to know that info Taco. Can you...

Hi, haven't posted in a while. We recently got a second opinion on ds 16. It was suggested that we get a nasal potential difference test this summer on him and his younger brother. We were told this is the gold standard for diagnosing atypical cf. Atlanta, Birmingham and Cincinnati were the...

Hi, haven't posted in a while. We recently got a second opinion on ds 16. It was suggested that we get a nasal potential difference test this summer on him and his younger brother. We were told this is the gold standard for diagnosing atypical cf. Atlanta, Birmingham and Cincinnati were the...

Hi, haven't posted in a while. We recently got a second opinion on ds 16. It was suggested that we get a nasal potential difference test this summer on him and his younger brother. We were told this is the gold standard for diagnosing atypical cf. Atlanta, Birmingham and Cincinnati were the...

Hi, I'm hoping someone can answer some questions regarding cf gene mutations. We learned a few months ago that youngest ds has 1 rare cf gene mutation, so we then decided to have older ds have a sweat test although he had one as a baby 15 years ago that we were told was negative. First sweat was...

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Thanks for your replies.

Thanks for your replies.

Thanks for your replies.

Hi, I'm hoping someone can answer some questions regarding cf gene mutations. We learned a few months ago that youngest ds has 1 rare cf gene mutation, so we then decided to have older ds have a sweat test although he had one as a baby 15 years ago that we were told was negative. First sweat...