Cystic Fibrosis Forum (EXP)

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  1. L

    Hi

    The Tobi is taking about 25 minutes, so I guess that means the compressor is working correctly. Lara hates it. The older shes getting the harder time she gives me. All her treatments combined take about 2 hours a day, so between homework and that she doesn't get much free time since she goes...
  2. L

    Hi

    The Tobi is taking about 25 minutes, so I guess that means the compressor is working correctly. Lara hates it. The older shes getting the harder time she gives me. All her treatments combined take about 2 hours a day, so between homework and that she doesn't get much free time since she goes...
  3. L

    Hi

    Thanks to all that replied.. Jenny, I will keep my fingers crossed for the jinx! ...Your posts were calming and that's what I need right now....CALM! Lara has 3 more days of Cipro and what seems like forever left on Tobi (its doing a job on her throat) and goes back to the Dr. 10/6 for another...
  4. L

    Hi

    Thanks to all that replied.. Jenny, I will keep my fingers crossed for the jinx! ...Your posts were calming and that's what I need right now....CALM! Lara has 3 more days of Cipro and what seems like forever left on Tobi (its doing a job on her throat) and goes back to the Dr. 10/6 for another...
  5. L

    Hi

    Thanks to all that replied.. <br />Jenny, I will keep my fingers crossed for the jinx! <br />...Your posts were calming and that's what I need right now....CALM! Lara has 3 more days of Cipro and what seems like forever left on Tobi (its doing a job on her throat) and goes back to the Dr. 10/6...
  6. L

    Hi

    Thanks Liza : ) I glad to hear DS is doing good!<div><br></div>
  7. L

    Hi

    Thanks Liza : ) I glad to hear DS is doing good!<br>
  8. L

    Hi

    Thanks Liza : ) I glad to hear DS is doing good!<br>
  9. L

    Hi

    I hope everyone is doing well. I've been lurking around for a while and am finally getting the nerve to post something (I had another screenname years ago but cant get into it on here so I made up another one)<div> Pseudomonas. Pseudomonas.Pseudomonas.</div><div>The word that passes through my...
  10. L

    Hi

    I hope everyone is doing well. I've been lurking around for a while and am finally getting the nerve to post something (I had another screenname years ago but cant get into it on here so I made up another one)Pseudomonas. Pseudomonas.Pseudomonas.The word that passes through my thoughts at least...
  11. L

    Hi

    I hope everyone is doing well. I've been lurking around for a while and am finally getting the nerve to post something (I had another screenname years ago but cant get into it on here so I made up another one)Pseudomonas. Pseudomonas.Pseudomonas.The word that passes through my thoughts at least...
  12. L

    R75Q variant - does it mean anything?

    Hi Sarah, I am also a carrier of the r75q mutation, my husband was a carrier of the 621+T>g mutation. My daughter has ALWAYS had lung issues from the day she was born, but it wasn't until she was 5 and going into severe status asthma in an pedi ICU that they tested her for CF. Her sweat test...
  13. L

    R75Q variant - does it mean anything?

    Hi Sarah, I am also a carrier of the r75q mutation, my husband was a carrier of the 621+T>g mutation. My daughter has ALWAYS had lung issues from the day she was born, but it wasn't until she was 5 and going into severe status asthma in an pedi ICU that they tested her for CF. Her sweat test...
  14. L

    R75Q variant - does it mean anything?

    Hi Sarah, I am also a carrier of the r75q mutation, my husband was a carrier of the 621+T>g mutation. My daughter has ALWAYS had lung issues from the day she was born, but it wasn't until she was 5 and going into severe status asthma in an pedi ICU that they tested her for CF. Her sweat test...
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