Cystic Fibrosis Forum (EXP)

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  1. L

    Who are you in a nut shell

    who are you in a nut shell My name's Lois. I used to come here a lot a few years ago, then sort of faded away, and now I'm back. I'm a woman. I'm 25 years and almost 7 months old [and yes, I'm one of those people who say they're X-and-a-half years old]. I live in Israel. I have CF, my mom...
  2. L

    Sinuses vs. Allergies

    I don't have any allergies except to parrots [I'd dead serious <img src="i/expressions/face-icon-small-smile.gif" border="0">], thank God. I do get sinus infections every once in a while, but they're not severe. I use Nasonex and well, plenty of painkillers, because I cannot function with sinus...
  3. L

    Comparring Nebulizers

    It is hell, but ony occasionally. If I'm very sick and I'm lying in a hospital bed with an IV and lung pains like something's chewing on me from the inside, yeah, it resembles hell very closely. But most of the time, life is bearable. For me. Each case is different and it depends on how severe...
  4. L

    Tatoos

    I got my first tattoo on May 6, 2004 and before I did, I consulted my CF doctor. Just in case, you know? She said that as long as the place is clean and all the precautions are being taken, tattoos don't disturb CF. And she actually liked my tattoo.The real good thing about getting it was that...
  5. L

    Women only question

    How about the Pill? I'm just about to start using the Minesse Pill [first time in my life I'm using oral contraceptives] and now reading this topic, I'm wondering. Does it make any difference for CF?
  6. L

    Help

    CF men go to the IVF solution in order to have babies. I had a conversation about this with my doctor, who told me about this CF guy who's very famous among the CF population in Israel, and that he and his wife are expecting now. Dave - "all juice, no seed" - thanks for the laugh <img...
  7. L

    sleeping all the time

    i'm usually sleeping a lot more when i'm eitherA. not taking my vitaminsB. not eating enough [happens most of the time]C. developing another lung infection
  8. L

    COmmitment to a man with CF

    B, your story is so sad... i'm so sorry that happened...back to the topic... i think even when you marry a healthy person, things can happen. we just had it happen in my family - my mom's second cousin. he's 51 years old, has a wife, a pre-teen son and a baby of 8 months, and he just got...
  9. L

    Cf and Breast Implants

    you should talk to your cf doctor first, and have him/her in close contact with the clinic where you want to get the implant at.i have quite the opposite issue - i want to get a breast reduction. it's still in planning and i haven't discussed it throughouly with my doc, but i did mention it...
  10. L

    special needs trust

    my mom did that - opened a savings account and regularly put money in it since i'm about 11 years old. in case i need lung transplant [because insurance wouldn't cover it 100%] or in any other case. just to have money on the side and not start to pile on loans frsntically if something...
  11. L

    Is anyone able to work a full time job?

    how about working part-time? or things like tutoring, babysitting, dogsitting [if you're not allergic].
  12. L

    pregnant CF woman needs reassurance

    dear kathi,i haven't been pregnant yet, but there are some things i wanted to say.there's a woman here in israel, she over 40 now. she has cf and 3 kids. my doctor told me it's advised to cf women to have one pregnancy, if you're doing real good - two. well, M beat the odds. her third pregnancy...
  13. L

    Dating?! I need some advice fast!!!

    <blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i>In my experiance, if I'm on my back for a long time having sex, I have to stop and cough. This can sometimes spoil the mood, but my boyfriend is very understanding. It just means we have to be a little mor creative...
  14. L

    Flu Shot

    i always get a flu shot. actually, the cf clinic i go to sends out reminders to every cf family in israel [there are about 500 cf patients here] about the time flu shots are available. we have a high awareness [so to speak] to flu shots in my family, because when both of my grandmothers passed...
  15. L

    Ear & Sinus Infections

    AM,i think you should take your daughter to another hospital and have her checked by always the same doctor. of course, a CF specialist. being always checked and monitored by the same doctor is the best. with time the doctor gets to know every single bit of your daughter's health and the little...
  16. L

    To those who know their genotype

    i don't know about Delta F508 being most severe mutation... it is indeed most common. i'm a double delta f508 myself as well. i'm definitely going to discuss the severity of that mutation with my doctor, next time i'm there - week and a half. the only thing i have to say is that if that's the...
  17. L

    Coping & Acceptance

    just a thought - why are you hesitant to put your daughter in a daycare? is that because of germs and stuff? because in that case, it's useless - if not now, she'll be with kids when she goes to school, so it's better for her to build up her immune system now. also, her being in daycare...
  18. L

    Stumbled across a beautiful article

    oh, that is absolutely beautiful...
  19. L

    vomitting

    my doctor told me about that little thing [no idea how it's called in english] that stops food from coming up when you're full. like, it closes your stomach so that food doesn't come up. she said in people with cf it sometimes is weaker because of all digestion problems and also that a lot of...
  20. L

    My infant of a week old has DeltaF508 and 3849+ 10KBC>t

    i have two copies of the DeltaF508 mutation - it's actually the most common mutation amongst CF-ers. i did hear, though, that having both parents with the same mutation [as it is in my case] is extremely rare, chances of about 1 to 10,000. so i feel cool about that <img...
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