Cystic Fibrosis Forum (EXP)

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  1. T

    HELLO MY NAME IS:

    <---  Michael 23,  CF CFRD. Live In Montana<br> <br> Diagonised at 3 months with CF   19 years old With CFRD
  2. T

    Another military problem

    Does this six weeks leave they give you count as a part of your 30 days a year paid leave, well 3 times a year 10 day each.  If not maybe see if you can use up 10 of them days.  My Uncle was in the navy and retired about 8 or 9 years ago when Cliton was cutting military so he got a hefty bonus...
  3. T

    Another military problem

    Does this six weeks leave they give you count as a part of your 30 days a year paid leave, well 3 times a year 10 day each.  If not maybe see if you can use up 10 of them days.  My Uncle was in the navy and retired about 8 or 9 years ago when Cliton was cutting military so he got a hefty bonus...
  4. T

    Another military problem

    Does this six weeks leave they give you count as a part of your 30 days a year paid leave, well 3 times a year 10 day each.  If not maybe see if you can use up 10 of them days.  My Uncle was in the navy and retired about 8 or 9 years ago when Cliton was cutting military so he got a hefty bonus...
  5. T

    Too many enzymes??

    I am on Pangestyme, only because my insurance won't pay for ultrase..  They don't say the dose amount, but i Take 4 with each meal, 5 or 6 if its a holiday or I am eating all I can to get as full as I can <img src="i/expressions/face-icon-small-smile.gif" border="0"> and 3 with snacks, althouh I...
  6. T

    Not working

    I work 15-20 hours a week sometimes a little bit more.  But at the rate of my health decline I probably won't beable to work.<br> But my daily schedule is getting up 2 hours before work cause my treatment plan takes about 1 hour.  go to work for 3-5 hours.  Get off work do another xopenex...
  7. T

    Disability

    I am on disability and my case manger lady person and I discussed my work ability.  In Montana for us here, I am able to work 25-30 hours a week at minium wage ( 5.25 $) per hour  If I make more per hour I can only work 20-25 hours a week.
  8. T

    14 and need to talk to some1

    I am 23 years old with CF and CFRD if you need someone to chat with I be more then happy to let you know about me and my CF.  I can't tell you what will work with/for you cause everyone is a bit different, but I can give my opinion.<br> <br> Michael<br> 23 years old-- Miles City, MT   diagonosed...
  9. T

    THE BABIES ARE HERE.. THE BABIES ARE HERE

    <strong>lightNlife</strong><br>  you don't get it do you.. healthy as in no complications from the birth...  <br> <br> But Congrats to both of you [IMG]i/expressions/face-icon-small-smile.gif" border="0[/IMG<br> <br> had to edit the name i wrote it wrong...
  10. T

    Not sure what to think about this article

    Excellent letter Emily I send him a email but not as in depth as yours.  you obvisouly put some thought into it. Mine was pretty short and to the point.  The editors reply was a simple saying that us CFer's have to adjust to what our normal is.  Well if this is the case then that family who...
  11. T

    Not sure what to think about this article

    bah this article from the get go is BS it says they want her daughter to live a normal life.. well having this disease my whole life and all my treatments and such... IT IS NORMAL for me.. In my opinion they need to quit feeling sorry for themselves.  That is what it sounds like they are doing...
  12. T

    The Denmark Way

    LOL I am going to move to france <img src="i/expressions/face-icon-small-smile.gif" border="0"><br> <br> usually in my hospital i get 1 window and its view is a bunch of dead trees that need to be taken out...
  13. T

    MRSA and chlorine in pools

    kind of off topic but at the same time its not.<br> I was reading a article ( I foregot where or I would post a link) But it was comparing people with CF.  They found that people with CF who like to surf or swim in the ocean alot have less problems with CF due to the salt in the water. Kind of...
  14. T

    poop - need some advice

    I used to have the same problem minus the blood in the stool.  I talked to my doc about it.  He increased my enzymes per meal / snack.   I have also notice even if I eat just a candy bar or small snack I need to take them cause If I don't my stomach gets upset and have soft discolored BM's<br>...
  15. T

    FEV vs FVC

    My FCV1 3 days ago was 85 ( been in the hospital 10 days at that point) and I got out today hopefully they a bit higher didn't do another pft.  I guess I didn't pay much attention to my FEV but I think it is around 50%
  16. T

    r u scared of death

    hello dani when I was younger mid-late teens I was scared about death. First off when I was real young I can barely remember the Dr telling me that the average lifespan was 18 years old..  so i grew up knowing when I hit 18 I was going to die.  Well 18 came and went.  I am not really afraid of...
  17. T

    Alcohol & Enzymes

    bah editing last post its every 3 months i go to billings.  the CF specialist comes down from denver.
  18. T

    Alcohol & Enzymes

    I have a local doc in town, but every 2 months I go to billings for a CF clinic.  The Dr. their is Frank Accurso he is a pretty big man among the CF world.  I also think that he is very smart and he actually explains stuffs to me.
  19. T

    New to forum

    I got the vest for airway clearance. Never done the HS yes.<br> <br>
  20. T

    Input from ones living with CF

    Just a thought coming from a guy.  I had access to a counsiler most all my life, but I really did not open up to him at all no one but me knows what goes on in my head and I was not about to let anyone know especially when I was a teen.  I think if you can find a CF counsler to have your son get...
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