Cystic Fibrosis Forum (EXP)

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    SCARED OF MY PSEUDOMONA CULTURE

    Hello, <br />My name is Jared. I am 11 years old and just cultured non-mucoid pseudomonas for the first time. I just can't believe this happened because I've been feeling fine and my lung function has been great. I don't like having to take all the extra medications because it is affecting my...
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    Service Dogs

    i got some hits on google - "service dogs for cystic fibrosis" good luck, kathy
  3. D

    Service Dogs

    i got some hits on google - "service dogs for cystic fibrosis" good luck, kathy
  4. D

    Service Dogs

    i got some hits on google - "service dogs for cystic fibrosis" <br />good luck, <br />kathy
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    Problems w/ joints or bones?

    Hi there, This happened once to my son as well; off to the ER we went. When I dosed w/advil, per their recommendations, it subsided. I think you will get more info from the CF doctors in terms of why this happens and what can be done about it. hth, Kathy
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    Problems w/ joints or bones?

    Hi there, This happened once to my son as well; off to the ER we went. When I dosed w/advil, per their recommendations, it subsided. I think you will get more info from the CF doctors in terms of why this happens and what can be done about it. hth, Kathy
  7. D

    Problems w/ joints or bones?

    Hi there, <br />This happened once to my son as well; off to the ER we went. When I dosed w/advil, per their recommendations, it subsided. I think you will get more info from the CF doctors in terms of why this happens and what can be done about it. <br /> <br />hth, <br />Kathy
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    air purifiers

    Hi all, We received funding through DDD, as my son's pulmonologist wrote a script for purifiers based on medical diagnosis and this was not a covered item on medicaid's DME list. Having said that <img src="i/expressions/face-icon-small-smile.gif" border="0">, yes, they help immensely; it's...
  9. D

    air purifiers

    Hi all, We received funding through DDD, as my son's pulmonologist wrote a script for purifiers based on medical diagnosis and this was not a covered item on medicaid's DME list. Having said that <img src="i/expressions/face-icon-small-smile.gif" border="0">, yes, they help immensely; it's...
  10. D

    air purifiers

    Hi all, <br />We received funding through DDD, as my son's pulmonologist wrote a script for purifiers based on medical diagnosis and this was not a covered item on medicaid's DME list. <br /> <br />Having said that <img src="i/expressions/face-icon-small-smile.gif" border="0">, yes, they help...
  11. D

    cf surf event

    hi, thanks to everyone who replied <img src="i/expressions/face-icon-small-smile.gif" border="0"> i contacted bobby serna @ mauli ola, the sponsor, had a very candid dialogue with him about my concerns and also posted on a few other sites. they really want this program to be a success and, thus...
  12. D

    cf surf event

    hi, thanks to everyone who replied <img src="i/expressions/face-icon-small-smile.gif" border="0"> i contacted bobby serna @ mauli ola, the sponsor, had a very candid dialogue with him about my concerns and also posted on a few other sites. they really want this program to be a success and, thus...
  13. D

    cf surf event

    hi, <br />thanks to everyone who replied <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br />i contacted bobby serna @ mauli ola, the sponsor, had a very candid dialogue with him about my concerns and also posted on a few other sites. <br />they really want this program to be a...
  14. D

    cf surf event

    Hi, I would like to hear from anyone whose child has attended a cf surf event; I am considering this in the near future for my son. The only reason I am hesitant is because of the exposure to other cfers and cross-contamination; thusfar, knock on wood, he only cultures staph aureus. I have...
  15. D

    cf surf event

    Hi, I would like to hear from anyone whose child has attended a cf surf event; I am considering this in the near future for my son. The only reason I am hesitant is because of the exposure to other cfers and cross-contamination; thusfar, knock on wood, he only cultures staph aureus. I have...
  16. D

    cf surf event

    Hi, <br />I would like to hear from anyone whose child has attended a cf surf event; I am considering this in the near future for my son. The only reason I am hesitant is because of the exposure to other cfers and cross-contamination; thusfar, knock on wood, he only cultures staph aureus. I...
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