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this is her third trip and she is yet to have a picc. She has done a great job with her meds over the last year, but as her dad there is always the fear of the uncertain. Our neighbor is also in for hers as well. keep us all in your thoughts. Chuck father to Avery 3 with ddf508 and Rhett 2...

Here is the link, great to see MTV reach out to Frankie, her family and all of us. Great stories about her, and how her castmates dealt with her living with CF. Great tribute, to Frankie and her "I'm gonna do it my way!" life. Here is to you Frankie! Chuck father to Avery 3 with DDF508 and...

Here is the link, great to see MTV reach out to Frankie, her family and all of us. Great stories about her, and how her castmates dealt with her living with CF. Great tribute, to Frankie and her "I'm gonna do it my way!" life. Here is to you Frankie! Chuck father to Avery 3 with DDF508 and...

I don't post on here much, but this one was too harsh to pass up. I for one would like to thank Frankie for living her life to the fulliest, you will be missed by all who knew you and now those who only read about you. You were a walking testament of Cystic Fibrosis each and everyday, you helped...

I wanted to share with all of you what just happend to me, my family is away for the night visiting in Chattanooga for spring break (wife is a teacher). I went down to the Universitiy of Tennessee to send off our basketball team which is playing in the Sweet Sixteen against Ohio State this...

Anyone with CF and Acid Reflux? Are the two related? My daughter had a bronchoscopy last week and they found acid in her lungs, which means she is aspirating it. Not good...the doc said this can cause major lung damange in the long run. she has to have a endoscopy with a PH probe soon. And...

Is anyone else out there frustrated with friends and family who have no idea what our childrens lives as CFers is like? Its not that they just don't know, because how could they know? But that they don't seem to want to know!! If I try to talk to loved ones about CF they back off and change...

Hi everyone, I have been gone from the forums for awhile. My life has been so hectic. Altleast one family member has been sick each week since Christmas...I am about to go crazy!! Avery has had broncitis and the flu. Rhett has had pneumonia, whooping cough, two ear infections and the...

Hey there, I was wondering...a few of you have pictures that are attached to your signature....how did you do that? I went to my profile and tried to copy and paste a picture to my signature and it did not work...any other suggestions? Thanks

I just realized our insurance sucks! After 12 visits in a year to the doctor, our co-pays go from $25 to $50!!!!! What is funny is that my 10 mo. old non-cfer is the one who has already maxed out on Dr. visits. Without realizing it his last 3 pediatric appointments have all been $50 each...

Our daughter is having some tests ran because the Gastro doc. noticed her liver was enlarged. He wouldn't tell me why he is having the tests ran and what he is looking for. But doing research I found out that enlarged liver and constant bloating are signs of liver disease, my daughter has both...

Hi! Sunday my daughter went to go use the bathroom and was in some pain. When I looked I noticed she had a pretty bad case of Rectal Prolapse. I already knew what rectal prolapse was because of this forum. It is the reason some babies w/CF are diagnosed during ultrasounds or at birth. But...

Hi everyone! I am beginning a campaign at the High School where I teach to raise CF awareness. My school has shown interest in raising money for CF research. I want to get a list of symptoms and medical conditions that are related to CF in order to use during my campaign to help them...

On one of the earlier posts there was a discussion about whether people who lived the longest with CF were the people who were diagnosed at older ages. I was just wondering if those of you who are adults with CF were diagnosed later in life or didn't present the symptoms until later in life. So...

On one of the earlier posts there was a discussion about whether people who lived the longest with CF were the people who were diagnosed at older ages. I was just wondering if those of you who are adults with CF were diagnosed later in life or didn't present the symptoms until later in life...

My daughter may be enzyme deficient even after taking her enzymes regularly. We have a test scheduled next week to check it out. My husband was told by someone that this can lead to CFRD. Is this true? If so any other info would help. If not what are the causes of CFRD?

Hi my daughter has been on enzymes since her diagnoses last January. She is still having problems with diarhea and bloating. Even with her bowl movements floating in the potty. We went to the doc yesterday and he said she may have Celiac disease as well. She was tested for Celiac disease last...

My daughter went to the Gastroenterologist yesterday and we were told she had an enlarged liver by about 2 to 3 cm. The doc asked us to schedule a liver ultrasound next week. He wouldn't say if the enlarged liver was a sign for anything or could cause problems. But then why do an ultrasound...

United Healthcare paid 100% of our daughters Vest!!! I could not believe it, after all the horror stories you hear about insurance and CFers! I just thought I would share this with everyone, so if by chance you get a chance to change to United Healthcare you would know it has been wonderful to...

Does anyone else have a problem with you friends not taking your child's CF seriously? I get so aggrevated when people close to me act like I am too worried or dramatic about my daughters CF. A few of my friends act like her diagnoses never happened, they never ask questions and blow me off...