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As I've been reading this I'm suddenly sitting up nice and straight! <br /> <br />I had a real problem with this a few years ago. So bad that I got severe back pain. My doctor sent me to a physical therapist who stretched me, massaged me and did some pilates work with me and it has helped...

If you taper off slowly things shouldn't be TOO bad. Well, that's the cxase for me anyway. I go on bursts of pred every so often and I find it's worse when I'm on higher doeses than when I'm tapering off. My main problem is the cramps and general pain but it usualy doesn't last too long. As long...

If you taper off slowly things shouldn't be TOO bad. Well, that's the cxase for me anyway. I go on bursts of pred every so often and I find it's worse when I'm on higher doeses than when I'm tapering off. My main problem is the cramps and general pain but it usualy doesn't last too long. As long...

If you taper off slowly things shouldn't be TOO bad. Well, that's the cxase for me anyway. I go on bursts of pred every so often and I find it's worse when I'm on higher doeses than when I'm tapering off. My main problem is the cramps and general pain but it usualy doesn't last too long. As long...

I got a port just over a week ago and have just had all the tape taken off today. I didn't realise earlier but now that I can see it I'm noticing it moves, a lot. Is this normal? It's in the top of my chest, kind of the top of my boob and moves from the middle of my chest to almost at my arm...

I got a port just over a week ago and have just had all the tape taken off today. I didn't realise earlier but now that I can see it I'm noticing it moves, a lot. Is this normal? It's in the top of my chest, kind of the top of my boob and moves from the middle of my chest to almost at my arm...

I got a port just over a week ago and have just had all the tape taken off today. I didn't realise earlier but now that I can see it I'm noticing it moves, a lot. Is this normal? <br />It's in the top of my chest, kind of the top of my boob and moves from the middle of my chest to almost at my...

This is a good thing to hear because after a really streeful time trying to get my last picc in (and failing!) I've finally caved and decided on a port. My question is where should i get it? My doctor told me the various places they can place them (chest, arm, groin, side) but I want to know...

This is a good thing to hear because after a really streeful time trying to get my last picc in (and failing!) I've finally caved and decided on a port. My question is where should i get it? My doctor told me the various places they can place them (chest, arm, groin, side) but I want to know...

This is a good thing to hear because after a really streeful time trying to get my last picc in (and failing!) I've finally caved and decided on a port. <br /> <br />My question is where should i get it? My doctor told me the various places they can place them (chest, arm, groin, side) but I...

I'm actually a little weird because I get a thrill out of cleaning but lately I'm finding it harder and harder. Especially cleaning bathrooms and dusting so my room mate gets stuck with those jobs which makes me feel guilty. I'd love to have a maid and think if you can afford one then definitely...

I'm actually a little weird because I get a thrill out of cleaning but lately I'm finding it harder and harder. Especially cleaning bathrooms and dusting so my room mate gets stuck with those jobs which makes me feel guilty. I'd love to have a maid and think if you can afford one then definitely...

I'm actually a little weird because I get a thrill out of cleaning but lately I'm finding it harder and harder. Especially cleaning bathrooms and dusting so my room mate gets stuck with those jobs which makes me feel guilty. I'd love to have a maid and think if you can afford one then definitely...

Wow Ash that's a really great way to let people know! I don't tell many people I have CF, not necessarily because I'm secretive about it but because I think not everybody needs to know. I think I'd be kind of scared to post something like that on facebook because I don't know how people would...

Wow Ash that's a really great way to let people know! I don't tell many people I have CF, not necessarily because I'm secretive about it but because I think not everybody needs to know. I think I'd be kind of scared to post something like that on facebook because I don't know how people would...

Wow Ash that's a really great way to let people know! I don't tell many people I have CF, not necessarily because I'm secretive about it but because I think not everybody needs to know. I think I'd be kind of scared to post something like that on facebook because I don't know how people would...

I've just been told I'm on the list two days ago and have lots and lots of questions. One thing I keep wondering is where I'll be when the call comes through and how will I react. So I was wondering- to everyone who has received "The Call"- where were you? And what were your first thoughts?

I've just been told I'm on the list two days ago and have lots and lots of questions. One thing I keep wondering is where I'll be when the call comes through and how will I react. So I was wondering- to everyone who has received "The Call"- where were you? And what were your first thoughts?

I've just been told I'm on the list two days ago and have lots and lots of questions. One thing I keep wondering is where I'll be when the call comes through and how will I react. <br /> <br />So I was wondering- to everyone who has received "The Call"- where were you? And what were your first...

this may be a really stupid question but when you can't actually have a shower after transplant do you not wash at all? does someone (a nurse i guess) wash you or do you just wait until you can shower yourself? i think i'll find that tough..not even having the independence to shower myself.