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Thanks, Allie - that is what I always have in the back of my
mind...let her have fun! I am thinking that it can't be much
worse than if she didn't have CF, but I also always have that (her
CF) in mind. If I ever find out that something can have
little or no harm to the norm, but can have major...
Hi everyone - I hope someone can help me with this one :-)
Does anyone know if the temporary hair color that you spray
on is safe for CF patients? My daughter had a festival
tonight at school and they were spraying the kid's hair for fun so
I let my daughter have her's sprayed. But, it got me...
Hi everyone - I hope someone can help me with this one :-)
Does anyone know if the temporary hair color that you spray
on is safe for CF patients? My daughter had a festival
tonight at school and they were spraying the kid's hair for fun so
I let my daughter have her's sprayed. But, it got me...
Hi everyone - I hope someone can help me with this one :-)
Does anyone know if the temporary hair color that you spray
on is safe for CF patients? My daughter had a festival
tonight at school and they were spraying the kid's hair for fun so
I let my daughter have her's sprayed. But, it got me...
For those of you who have never heard of Dr. Diaz, he was one of
the best pediatric CF doctors around. Unfortunately, he
passed away in November of 2004 after a very brief illness.<br>
<br>
He treated our daughter since her diagnosis and was so wonderful to
her and all of his patients! He was...
That is funny that you said that because that is pretty much what I
told them...ugh!!! The ignorance of CF. Oh well...I was
once there too! I have her doc and nurses working on
it...let's hope it works :-)<br>
<br>
Thanks for the reply...it made me laugh :-)<br>
<br>
Hi everyone - I am hoping someone here can help me! My 6
year-old is attending a before and after school program (only one
hour before and after) offered by parks and rec. During the
after school program she gets a snack and needs 1 enzyme.
The head of parks and rec has informed me that...
Before I ask the question, let me introduce myself. I have
been on this site on and off for the last 4-5 years...had a login a
long time ago and forgot it and have mostly posted as anon, until
now :-) I have a 6 year old girl with CF who thankfully
is doing amazing! I will from time to time...
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