Cystic Fibrosis Forum (EXP)

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  1. S

    I got my port

    I have a chest port which I love. I have had it for 8 years. I only go in the hospital every 3 years, but in 2000 the doctors hit a nerve in my arm which caused years of problems. My sister had an arm port which she had a hard time accessing herself, and she had to be careful when playing...
  2. S

    I got my port

    I have a chest port which I love. I have had it for 8 years. I only go in the hospital every 3 years, but in 2000 the doctors hit a nerve in my arm which caused years of problems. My sister had an arm port which she had a hard time accessing herself, and she had to be careful when playing...
  3. S

    I got my port

    I have a chest port which I love. I have had it for 8 years. I only go in the hospital every 3 years, but in 2000 the doctors hit a nerve in my arm which caused years of problems. My sister had an arm port which she had a hard time accessing herself, and she had to be careful when playing...
  4. S

    I got my port

    I have a chest port which I love. I have had it for 8 years. I only go in the hospital every 3 years, but in 2000 the doctors hit a nerve in my arm which caused years of problems. My sister had an arm port which she had a hard time accessing herself, and she had to be careful when playing...
  5. S

    I got my port

    I have a chest port which I love. I have had it for 8 years. I only go in the hospital every 3 years, but in 2000 the doctors hit a nerve in my arm which caused years of problems. My sister had an arm port which she had a hard time accessing herself, and she had to be careful when playing...
  6. S

    Sinus Surgery

    Everyone is a little different. I have had two sinus surgeries. My first one was really easy, I had polyps removed through my sinuses. I had the surgery on Friday and was back to work on Monday. My second one took place a couple of months ago and it was to remove infection and scar tissue...
  7. S

    Sinus Surgery

    Everyone is a little different. I have had two sinus surgeries. My first one was really easy, I had polyps removed through my sinuses. I had the surgery on Friday and was back to work on Monday. My second one took place a couple of months ago and it was to remove infection and scar tissue...
  8. S

    Sinus Surgery

    Everyone is a little different. I have had two sinus surgeries. My first one was really easy, I had polyps removed through my sinuses. I had the surgery on Friday and was back to work on Monday. My second one took place a couple of months ago and it was to remove infection and scar tissue...
  9. S

    Sinus Surgery

    Everyone is a little different. I have had two sinus surgeries. My first one was really easy, I had polyps removed through my sinuses. I had the surgery on Friday and was back to work on Monday. My second one took place a couple of months ago and it was to remove infection and scar tissue...
  10. S

    Sinus Surgery

    Everyone is a little different. I have had two sinus surgeries. My first one was really easy, I had polyps removed through my sinuses. I had the surgery on Friday and was back to work on Monday. My second one took place a couple of months ago and it was to remove infection and scar tissue...
  11. S

    Who are you in a nut shell

    who are you in a nut shell My name is Ann I'm 28 years old with mild CF I'm the youngest of 6 children 4 of which have CF My sister Died at the age of 23, and one brother died at the age of 29 from CF My one surviving sibling with CF is 32 I have been married to a wonderful man for 7 years now...
  12. S

    MAI

    I am 28 years old with CF and recently diagnosed with MAI (Mycobacterium Avium-Intracellulare). Have any of you ever heard of this? Most of the information I have found on it deals with people that are HIV positive, which I am not. I am trying to find out symptoms (if there are any, I have...
  13. S

    MAI

    I am 28 years old with CF and recently diagnosed with MAI (Mycobacterium Avium-Intracellulare). Have any of you ever heard of this? Most of the information I have found on it deals with people that are HIV positive, which I am not. I am trying to find out symptoms (if there are any, I have...
  14. S

    MAI

    I am 28 years old with CF and recently diagnosed with MAI (Mycobacterium Avium-Intracellulare). Have any of you ever heard of this? Most of the information I have found on it deals with people that are HIV positive, which I am not. I am trying to find out symptoms (if there are any, I have...
  15. S

    MAI

    I am 28 years old with CF and recently diagnosed with MAI (Mycobacterium Avium-Intracellulare). Have any of you ever heard of this? Most of the information I have found on it deals with people that are HIV positive, which I am not. I am trying to find out symptoms (if there are any, I have...
  16. S

    MAI

    I am 28 years old with CF and recently diagnosed with MAI (Mycobacterium Avium-Intracellulare). Have any of you ever heard of this? Most of the information I have found on it deals with people that are HIV positive, which I am not. I am trying to find out symptoms (if there are any, I have...
  17. S

    Ports

    I try to do mine every month, but I'm not that particular at what time of month. That is I know it doesn't get done on a regular basis. I usually average between 3-6 weeks, but I have gone longer. I think the reason the adult clinics aren't as concerned is because most of their patients that...
  18. S

    pregnancy and FEV1

    This is my first time on this web site but I thought I would just say a little bit on the subject of having kids. I think it is a great thing even when you are afraid of leaving them behind. I have a sister that died at the age of 23. At that time her son was 2 years old. He was the greatest...
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