Cystic Fibrosis Forum (EXP)

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  1. J

    new need opinions

    Ohhh ok. I'm following you now. Yeah in the articles I read it didn't say if it was IRT or sweat. I have a book of questions for when we go to the CF specialist so that will be one to ask. I'm deffently going to call her pedi today. Thanks so much ?
  2. J

    new need opinions

    Honestly idk what the difference between IRT and sweat. She just had her sweat test on Wednesday and that is what was
  3. J

    new need opinions

    I've been looking threw her nicu records. They never said anything but then again looking threw her nicu records they didn't tell me a lot. From what I have read they can have low levels at birth and be diagnosed later in life.
  4. J

    new need opinions

    Thank you. It has been a major roller coaster. The information i was given was For people older than 6 months of age, a chloride level of: Equal to or less than 39 mmol/L = CF is very unlikely 40 - 59 mmol/L = intermediate means that CF is possible Greater than or equal to 60 mmol/L = CF...
  5. J

    new need opinions

    Let me start from the beginning.Last December my daughter was diagnosed with malabsorpation. She was 10lbs at 7 months old. We seen a gastric specialist. Changed diet etc. She gained weight and doctors were happy. When she turned a year old in may we discovered she is lactose intolerant. It...
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