Cystic Fibrosis Forum (EXP)

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  1. J

    What does your CF effect?

    Hi, CF affects my lungs and digestive systeme, just before 30 minutes I have finished my inhalation (10ml of Hypertonic saline and 15ml saline solution) and now I am eating my breakfast (I used 7 capsulles with Creon 25000 for 3 pieces of bread with chees and bacon)... Another questions is...
  2. J

    What experiences do you have with Hypertonic saline and Azithromycin?

    Hi, I already 4 weeks inhale about 15ml hypertonic saline every day with Pari eFlow rapid nebuliser (and about 20ml solution saline and 2,5ml Pulmozyme ) . I supply with that Amiloride (Amiloridi chlorati 0,006...Natrii chlorati 0,18...Aquae destil. ad 20,0 ml). I have read that in some...
  3. J

    Nebulizers

    Hi, I already one year use new Pari eFlow Rapid (European version, cost about 700Euro). For example I nebulise 5ml Hypertonic saline with it in 9-10 minutes. 5ml Colistine in 10 minutes. 2,5 ml Pulmozyme in 3-4 minutes. 5 ml TOBI in 12-15 minutes. It is quiet, quickly and small. You can...
  4. J

    JUST CURIOUS -What is the cost of your medications?

    Hi, in central Europe (Czech republic) I pay for common antibiotics : 15-20$ for a month. Hypertonic saline is free, Pulmozyme is free, Creon is free, Colistin is free, only for CF and all have to be aproved by "inspection doctor"and it vary half a year... I pay for cure medicaments and...
  5. J

    Pari eflow

    Hi, in Europe there is other version called PARI eFlow Rapid (cost circa 700Euro) , I use it for 11 moth. It is possible to nebulise Pulmozyme, Amiloride, Colistin, Hypertonic Saline, TOBI with it. In Czech republic use it now about 50-60 other patients... Bye John81John/25 CF
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