Cystic Fibrosis Forum (EXP)

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  1. G

    Bad Breath

    Yes. I get really bad breath when my PA is flaring, pretty much like everyone else said. I know how you feel though because my boyfriend is like "WHOA that stinks" lol we joke about it so it's ok, but I know how it can make you feel self conscience. Don't worry though, there seriously is nothing...
  2. G

    Preparing for Transplant Eval

    I'm going to be evaluated at Duke soon for a transplant. Has anyone ever been there? I'm just wondering what to expect, what kind of tests they are going to run, just anything special I need to know beforehand? I know we are going to be there for a week. That's about it. Anything is helpful...
  3. G

    Preparing for Transplant Eval

    I'm going to be evaluated at Duke soon for a transplant. Has anyone ever been there? I'm just wondering what to expect, what kind of tests they are going to run, just anything special I need to know beforehand? I know we are going to be there for a week. That's about it. Anything is helpful...
  4. G

    Preparing for Transplant Eval

    I'm going to be evaluated at Duke soon for a transplant. Has anyone ever been there? I'm just wondering what to expect, what kind of tests they are going to run, just anything special I need to know beforehand? I know we are going to be there for a week. That's about it. Anything is helpful...
  5. G

    body aches and rash

    OMG you don't know how happy/relieved I am to read this thread!!! I have been dealing with this rash thing for a few days now and my docs are stumped. I am just so glad to know yall have had it too and I'm not crazy!!!
  6. G

    body aches and rash

    OMG you don't know how happy/relieved I am to read this thread!!! I have been dealing with this rash thing for a few days now and my docs are stumped. I am just so glad to know yall have had it too and I'm not crazy!!!
  7. G

    body aches and rash

    OMG you don't know how happy/relieved I am to read this thread!!! I have been dealing with this rash thing for a few days now and my docs are stumped. I am just so glad to know yall have had it too and I'm not crazy!!!
  8. G

    We are in the hospital/Update

    We are in the hospital Get better soon Adam! Kick butt! You'll be out in no time bud!
  9. G

    We are in the hospital/Update

    We are in the hospital Get better soon Adam! Kick butt! You'll be out in no time bud!
  10. G

    We are in the hospital/Update

    We are in the hospital Get better soon Adam! Kick butt! You'll be out in no time bud!
  11. G

    We are in the hospital/Update

    We are in the hospital Get better soon Adam! Kick butt! You'll be out in no time bud!
  12. G

    We are in the hospital/Update

    We are in the hospital Get better soon Adam! Kick butt! You'll be out in no time bud!
  13. G

    Not Listening or Answering

    I don't know if this will help since I'm not a parent but a patient, but I just know what my parents did for me. It might sound harsh, but my parents were told by docs from the time my brother and I were diagnosed that it was OUR disease, NOT my parents. And it's so true. Yes, your parents are...
  14. G

    Not Listening or Answering

    I don't know if this will help since I'm not a parent but a patient, but I just know what my parents did for me. It might sound harsh, but my parents were told by docs from the time my brother and I were diagnosed that it was OUR disease, NOT my parents. And it's so true. Yes, your parents are...
  15. G

    Not Listening or Answering

    I don't know if this will help since I'm not a parent but a patient, but I just know what my parents did for me. It might sound harsh, but my parents were told by docs from the time my brother and I were diagnosed that it was OUR disease, NOT my parents. And it's so true. Yes, your parents are...
  16. G

    Not Listening or Answering

    I don't know if this will help since I'm not a parent but a patient, but I just know what my parents did for me. It might sound harsh, but my parents were told by docs from the time my brother and I were diagnosed that it was OUR disease, NOT my parents. And it's so true. Yes, your parents are...
  17. G

    Not Listening or Answering

    I don't know if this will help since I'm not a parent but a patient, but I just know what my parents did for me. <br /> <br />It might sound harsh, but my parents were told by docs from the time my brother and I were diagnosed that it was OUR disease, NOT my parents. And it's so true. Yes, your...
  18. G

    Meds that make you SOB

    I've had the same problem with Tobi and recently had to stop taking it. I've heard from my doctors that a lot of patients react badly the first time they use the drug, but others can use it for years (like us) and then all of a sudden they have bronchospasms which causes the SOB, tightness...
  19. G

    Meds that make you SOB

    I've had the same problem with Tobi and recently had to stop taking it. I've heard from my doctors that a lot of patients react badly the first time they use the drug, but others can use it for years (like us) and then all of a sudden they have bronchospasms which causes the SOB, tightness...
  20. G

    Meds that make you SOB

    I've had the same problem with Tobi and recently had to stop taking it. I've heard from my doctors that a lot of patients react badly the first time they use the drug, but others can use it for years (like us) and then all of a sudden they have bronchospasms which causes the SOB, tightness...
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