Cystic Fibrosis Forum (EXP)

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  1. K

    Newly Diagnosed ?

    Sorry if I confused you, no I do think she has CF, but want to understand more, and hear more about others who have CF but whom have had testing not supporting 100% diagnosing. When you read about the sweat test yes it is 99.9% but what if she has something else Addrenal gland can cause a false...
  2. K

    Newly Diagnosed ?

    Sorry if I confused you, no I do think she has CF, but want to understand more, and hear more about others who have CF but whom have had testing not supporting 100% diagnosing. When you read about the sweat test yes it is 99.9% but what if she has something else Addrenal gland can cause a false...
  3. K

    Newly Diagnosed ?

    Sorry if I confused you, no I do think she has CF, but want to understand more, and hear more about others who have CF but whom have had testing not supporting 100% diagnosing. When you read about the sweat test yes it is 99.9% but what if she has something else Addrenal gland can cause a false...
  4. K

    Newly Diagnosed ?

    Sorry if I confused you, no I do think she has CF, but want to understand more, and hear more about others who have CF but whom have had testing not supporting 100% diagnosing. When you read about the sweat test yes it is 99.9% but what if she has something else Addrenal gland can cause a false...
  5. K

    Newly Diagnosed ?

    Sorry if I confused you, no I do think she has CF, but want to understand more, and hear more about others who have CF but whom have had testing not supporting 100% diagnosing. When you read about the sweat test yes it is 99.9% but what if she has something else Addrenal gland can cause a false...
  6. K

    Newly Diagnosed ?

    I have posted before and now if you dont mind I would like to hear from you and how you where diagnosed. How many of you dont no your gene? Or cant be found? How many of you had a positive sweat test without supoorting testing? It has almost been a year since we where told are daughter has...
  7. K

    Newly Diagnosed ?

    I have posted before and now if you dont mind I would like to hear from you and how you where diagnosed. How many of you dont no your gene? Or cant be found? How many of you had a positive sweat test without supoorting testing? It has almost been a year since we where told are daughter has...
  8. K

    Newly Diagnosed ?

    I have posted before and now if you dont mind I would like to hear from you and how you where diagnosed. How many of you dont no your gene? Or cant be found? How many of you had a positive sweat test without supoorting testing? It has almost been a year since we where told are daughter has...
  9. K

    Newly Diagnosed ?

    I have posted before and now if you dont mind I would like to hear from you and how you where diagnosed. How many of you dont no your gene? Or cant be found? How many of you had a positive sweat test without supoorting testing? It has almost been a year since we where told are daughter has...
  10. K

    Newly Diagnosed ?

    I have posted before and now if you dont mind I would like to hear from you and how you where diagnosed. <br />How many of you dont no your gene? Or cant be found? <br />How many of you had a positive sweat test without supoorting testing? <br />It has almost been a year since we where told...
  11. K

    I need some advice please!!!!!!!!!!!!!!

    they ran the 32 mutatins first coming back neg. the doc. said it would be longer so they can run more mutatin testing ... that was another 3 weeks we waited.. nothing could be found...???
  12. K

    I need some advice please!!!!!!!!!!!!!!

    they ran the 32 mutatins first coming back neg. the doc. said it would be longer so they can run more mutatin testing ... that was another 3 weeks we waited.. nothing could be found...???
  13. K

    I need some advice please!!!!!!!!!!!!!!

    they ran the 32 mutatins first coming back neg. the doc. said it would be longer so they can run more mutatin testing ... that was another 3 weeks we waited.. nothing could be found...???
  14. K

    I need some advice please!!!!!!!!!!!!!!

    they ran the 32 mutatins first coming back neg. the doc. said it would be longer so they can run more mutatin testing ... that was another 3 weeks we waited.. nothing could be found...???
  15. K

    I need some advice please!!!!!!!!!!!!!!

    they ran the 32 mutatins first coming back neg. the doc. said it would be longer so they can run more mutatin testing ... that was another 3 weeks we waited.. nothing could be found...???
  16. K

    I need some advice please!!!!!!!!!!!!!!

    O.k. my daughter had two sweat test done one showed 68 and the other was borderline. Next we did the stool sample, chest X-ray, DNA, Vitiam check. They told me she had CF. She went into the doc. for a cold and cough, she always seems to get the same bad cold and cough every year. So they sent...
  17. K

    I need some advice please!!!!!!!!!!!!!!

    O.k. my daughter had two sweat test done one showed 68 and the other was borderline. Next we did the stool sample, chest X-ray, DNA, Vitiam check. They told me she had CF. She went into the doc. for a cold and cough, she always seems to get the same bad cold and cough every year. So they sent...
  18. K

    I need some advice please!!!!!!!!!!!!!!

    O.k. my daughter had two sweat test done one showed 68 and the other was borderline. Next we did the stool sample, chest X-ray, DNA, Vitiam check. They told me she had CF. She went into the doc. for a cold and cough, she always seems to get the same bad cold and cough every year. So they sent...
  19. K

    I need some advice please!!!!!!!!!!!!!!

    O.k. my daughter had two sweat test done one showed 68 and the other was borderline. Next we did the stool sample, chest X-ray, DNA, Vitiam check. They told me she had CF. She went into the doc. for a cold and cough, she always seems to get the same bad cold and cough every year. So they sent...
  20. K

    I need some advice please!!!!!!!!!!!!!!

    O.k. my daughter had two sweat test done one showed 68 and the other was borderline. Next we did the stool sample, chest X-ray, DNA, Vitiam check. They told me she had CF. She went into the doc. for a cold and cough, she always seems to get the same bad cold and cough every year. So they sent...
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