Cystic Fibrosis Forum (EXP)

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  1. A

    Newly diagnosed and stationed overseas!

    I can't tell you how thankful I am that you responded. I am statined at heidelberg, not too far from Landstuhl but was told that there are no specialist in Europe that could help us. My son has already been classed an EFMP, his ped doc is also the EFMP doc. Her solution was that if he gets...
  2. A

    Newly diagnosed and stationed overseas!

    I can't tell you how thankful I am that you responded. I am statined at heidelberg, not too far from Landstuhl but was told that there are no specialist in Europe that could help us. My son has already been classed an EFMP, his ped doc is also the EFMP doc. Her solution was that if he gets...
  3. A

    Newly diagnosed and stationed overseas!

    I can't tell you how thankful I am that you responded. I am statined at heidelberg, not too far from Landstuhl but was told that there are no specialist in Europe that could help us. My son has already been classed an EFMP, his ped doc is also the EFMP doc. Her solution was that if he gets...
  4. A

    Newly diagnosed and stationed overseas!

    I can't tell you how thankful I am that you responded. I am statined at heidelberg, not too far from Landstuhl but was told that there are no specialist in Europe that could help us. My son has already been classed an EFMP, his ped doc is also the EFMP doc. Her solution was that if he gets...
  5. A

    Newly diagnosed and stationed overseas!

    I can't tell you how thankful I am that you responded. I am statined at heidelberg, not too far from Landstuhl but was told that there are no specialist in Europe that could help us. My son has already been classed an EFMP, his ped doc is also the EFMP doc. Her solution was that if he gets...
  6. A

    Newly diagnosed and stationed overseas!

    I can't tell you how thankful I am that you responded. I am statined at heidelberg, not too far from Landstuhl but was told that there are no specialist in Europe that could help us. My son has already been classed an EFMP, his ped doc is also the EFMP doc. Her solution was that if he gets...
  7. A

    Newly diagnosed and stationed overseas!

    I can't tell you how thankful I am that you responded. I am statined at heidelberg, not too far from Landstuhl but was told that there are no specialist in Europe that could help us. My son has already been classed an EFMP, his ped doc is also the EFMP doc. Her solution was that if he gets...
  8. A

    DELTA F508 5T

    Ok so now I know what mutations my son has what does this mean? We still don't know if he is active or just a carrier. The Dr is trying to get authorization for a full genetic panel - what will this tell us? Confused!
  9. A

    DELTA F508 5T

    Ok so now I know what mutations my son has what does this mean? We still don't know if he is active or just a carrier. The Dr is trying to get authorization for a full genetic panel - what will this tell us? Confused!
  10. A

    DELTA F508 5T

    Ok so now I know what mutations my son has what does this mean? We still don't know if he is active or just a carrier. The Dr is trying to get authorization for a full genetic panel - what will this tell us? Confused!
  11. A

    DELTA F508 5T

    Ok so now I know what mutations my son has what does this mean? We still don't know if he is active or just a carrier. The Dr is trying to get authorization for a full genetic panel - what will this tell us? Confused!
  12. A

    DELTA F508 5T

    Ok so now I know what mutations my son has what does this mean? We still don't know if he is active or just a carrier. The Dr is trying to get authorization for a full genetic panel - what will this tell us? Confused!
  13. A

    rectal biopsy?

    Ok so my son tested positive for CF in his new born screening. I am stationed in Germany and was sent to a german Dr who performed 2 sweat test which apparently were inconclusive, a stool sample test which showed his pancrease was functioning normally. Now they want to put him under and...
  14. A

    rectal biopsy?

    Ok so my son tested positive for CF in his new born screening. I am stationed in Germany and was sent to a german Dr who performed 2 sweat test which apparently were inconclusive, a stool sample test which showed his pancrease was functioning normally. Now they want to put him under and...
  15. A

    rectal biopsy?

    Ok so my son tested positive for CF in his new born screening. I am stationed in Germany and was sent to a german Dr who performed 2 sweat test which apparently were inconclusive, a stool sample test which showed his pancrease was functioning normally. Now they want to put him under and...
  16. A

    rectal biopsy?

    Ok so my son tested positive for CF in his new born screening. I am stationed in Germany and was sent to a german Dr who performed 2 sweat test which apparently were inconclusive, a stool sample test which showed his pancrease was functioning normally. Now they want to put him under and...
  17. A

    rectal biopsy?

    Ok so my son tested positive for CF in his new born screening. I am stationed in Germany and was sent to a german Dr who performed 2 sweat test which apparently were inconclusive, a stool sample test which showed his pancrease was functioning normally. Now they want to put him under and...
  18. A

    Newly diagnosed and stationed overseas!

    My son (now 3 months) tested positive in his well baby check however we still do not know if he is a carrier or if he has CF. My frustration is that Im stationed overseas and do not have access to the medical care I would like. Everytime I have a question his Dr has to email a Dr in the states...
  19. A

    Newly diagnosed and stationed overseas!

    My son (now 3 months) tested positive in his well baby check however we still do not know if he is a carrier or if he has CF. My frustration is that Im stationed overseas and do not have access to the medical care I would like. Everytime I have a question his Dr has to email a Dr in the states...
  20. A

    Newly diagnosed and stationed overseas!

    My son (now 3 months) tested positive in his well baby check however we still do not know if he is a carrier or if he has CF. My frustration is that Im stationed overseas and do not have access to the medical care I would like. Everytime I have a question his Dr has to email a Dr in the states...
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