Cystic Fibrosis Forum (EXP)

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    Oddly, GOOD news for me :)

    Oddly enough, after getting the news of my SS problem on Saturday, and changing my working life Monday... I got the news from my long term fiance that her genetic screening test (that took FOREVER to get back) finally came back, and she is NEGATIVE for any CF carrier genes! She is 37, and...
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    Well bad news for me

    Woke up yesterday to a letter in the mail from SS. Basically saying we are cutting off your benefits, you earn too much via working, etc etc. So I call them today and talk to a nice lady. Basically, you can't earn more than 940 per month GROSS. Which as we all know is lame...We all have to pay...
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    Disorder in the court

    These are from a book called Disorder in the American Courts, and are things people actually said in court, word for word, taken down and now published by court reporters who had the torment of staying calm while these exchanges were actually taking place. ATTORNEY: Are you sexually active...
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    A weird idea struck me

    And yes, this *IS* CF related. If any of you out there like the band The Doors, and/or were ever into the writings of Jim Morrison you may find this interesting, or slightly thought provoking. I have always been a big Doors/Morrison fan, and I also listen to a lot of Coast to Coast (late...
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    Endgame

    You will dig this. If you didn't like Zeitgeist, you won't like this. As with both movies, you can cross reference the statements made in the film(s) to show these don't solely dwell on conjecture and hypothesis, much of it if not all of it is shown to be factual. This film (due to it being...
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    Stem cell treatments for CF?

    Ok so even dating back to embryonic stem cell research, and up to now with using stem cells from our own skin cells, I have been hearing a ton of information regarding using these advances to treat many different disease. Alzheimers, parkinsons, heart disease, etc etc. I bought a book for my...
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    Insurance rant #9872512

    Ok so, just another example in endless examples of how our insurance system is so utterly screwed up. I have an insurance company that isn't all that United, nor do I believe they are Americans <img src="i/expressions/face-icon-small-smile.gif" border="0"> as a primary insurance, it is my...
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    Some info on hydrogen peroxide

    Ok so I was sitting around today thinking of cheap and easy things to add to my sinus douche and I started wondering about hydrogen peroxide. It's way cheap, and readily available. Also, hydrogen peroxide is plain WATER (two molecules of hydrogen) with the only difference being it has two...
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    New info on Curcumin

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.cbsnews.com/stories/2008/02/26/health/webmd/main3880231.shtml ">http://www.cbsnews.com/stories...bmd/main3880231.shtml </a> Of course it was done in rats, and we aren't rats, and there was previously a study that showed the CFTR...
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    Found something cool

    First about my clinic...If any of you sinus problem or CFRD vets want to comment, please do so. Well I got back from my CF clinic today, with mixed reviews. My PFT's were @ 101%. That's the good news, and I was clear except for my two lower lobes. The bad news is that my doc REALLY wants me to...
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    A cool read on Vitamin K

    So when you think of vitamin K as a CF'r you only think of it as needed to help with clotting correct? Maybe so, but vitamin K's magic is much more beneficial than that. Some of this even surprised me. Check it out (remember to get the most benefit from vitamin K, eat healthy fats when taking...
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    Share your culture

    Just got back my latest info on my sputum culture. Not bad news at all. I figured we all could share what buggies we have shown most recently. ME: Mild Pseudo A Light serratia (no clue if this is good or bad, doc said its not a bad thing) The good news: I didn't show any staph at...
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    Turmeric/Curcumin

    I was just wondering if anyone takes this supplement, and if so how do they feel compared to before they started taking it, and also how much and how often do you take it? I got turned onto it quite a while back when it was discovered that curcumin supplementation corrected the CF defect in...
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    Blood sugar question

    So I went and had a full blood count done yesterday at the cf clinic. I hadn't had anything to eat at all (wasn't expecting blood sugar scrutiny though), BUT I drank a large arizona sweet iced tea, and chewed down some bubbilicious sour cherry burst gums. So needless to say, there was a ton of...
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    Odd ideas for treating CF?

    Ok so I have a ton of time to think while at work, and while i'm obviously not a scientist (though I do play one at bars!) I do have a good imagination. Imagination + tons of thinking time = you come up with some odd ideas. And since Einstein said imagination is vastly more important than...
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    This made me cry

    I think it will touch everyone (very emotional little boy, seeing his daddy for the first time coming home from Iraq). <a target=_blank class=ftalternatingbarlinklarge href="http://www.vidmax.com/index.php/videos/view/1227">http://www.vidmax.com/index.php/videos/view/1227</a>
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    Pretty neat right here

    But I thought this was noteworthy enough, with all the pre, and post transplant patients running around to pay attention to. This is the first time, to our knowledge, that a recipient's blood type had actually changed, to the donors blood type, after the transplant. Granted it was the liver and...
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    Ok so like I have CF

    Well I suppose this is the right forum, because well, I am indeed a CF Adult (adult = loosely used) and I have a word of advice for other CF people: Drink you're school, stay in milk, don't do vegetables, eat your drugs...Oh and what else did I miss? Oh yeah, try and be polite to everyone you...
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    So I guess i'm screwed

    So here goes. I'll try and relate the info and make this short. History: I finished my degree back in late 05/early 06. I didn't have much work history to show for my life before then due to my disease/dependency upon my mothers insurance. So the 2 jobs I had of any substantive time were both...
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    Conversations with God/The Alien

    Humor me. Let's pretend, that just for a second...You have an all knowing being, all powerful, that is willing to talk to you, and share his/her knowledge with you. If you had one chance to ask that being anything, what would you ask them? Remember, you only have ONE question. Nothing else...
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