Cystic Fibrosis Forum (EXP)

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  1. L

    Make a Wish

    I looked up on the MAW website and it said that they grant wishes to those under 18 who have a progressive, degenerative or malignant conditin. CF obviously qualifies under progressive. My 9 year old just meet with her wish granter last weekend. She wished to go to Disney World. Our state also...
  2. L

    Make a Wish

    I looked up on the MAW website and it said that they grant wishes to those under 18 who have a progressive, degenerative or malignant conditin. CF obviously qualifies under progressive. My 9 year old just meet with her wish granter last weekend. She wished to go to Disney World. Our state also...
  3. L

    Make a Wish

    I looked up on the MAW website and it said that they grant wishes to those under 18 who have a progressive, degenerative or malignant conditin. CF obviously qualifies under progressive. My 9 year old just meet with her wish granter last weekend. She wished to go to Disney World. Our state also...
  4. L

    Make a Wish

    I looked up on the MAW website and it said that they grant wishes to those under 18 who have a progressive, degenerative or malignant conditin. CF obviously qualifies under progressive. My 9 year old just meet with her wish granter last weekend. She wished to go to Disney World. Our state also...
  5. L

    Funny germaphobe story

    Ewwww! My son had a tea party with his sister's play tea set. He filled them up with toilet water and drank it before we caught him. Also on a camping trip he layed down on the ground and licked the dirt. Not sure why he did that.
  6. L

    Funny germaphobe story

    Ewwww! My son had a tea party with his sister's play tea set. He filled them up with toilet water and drank it before we caught him. Also on a camping trip he layed down on the ground and licked the dirt. Not sure why he did that.
  7. L

    Funny germaphobe story

    Ewwww! My son had a tea party with his sister's play tea set. He filled them up with toilet water and drank it before we caught him. Also on a camping trip he layed down on the ground and licked the dirt. Not sure why he did that.
  8. L

    Funny germaphobe story

    Ewwww! My son had a tea party with his sister's play tea set. He filled them up with toilet water and drank it before we caught him. Also on a camping trip he layed down on the ground and licked the dirt. Not sure why he did that.
  9. L

    Funny germaphobe story

    Ewwww! My son had a tea party with his sister's play tea set. He filled them up with toilet water and drank it before we caught him. Also on a camping trip he layed down on the ground and licked the dirt. Not sure why he did that.
  10. L

    Who's working on their taxes?

    We have a note from the doctors that state that the whole milk, gatorade and carnation instant breakfast are nutritionally important and so we can deduct those also. We could also put in there butter but since the entire famiy uses it we would have to divide it out by the number of people with...
  11. L

    Who's working on their taxes?

    We have a note from the doctors that state that the whole milk, gatorade and carnation instant breakfast are nutritionally important and so we can deduct those also. We could also put in there butter but since the entire famiy uses it we would have to divide it out by the number of people with...
  12. L

    Who's working on their taxes?

    We have a note from the doctors that state that the whole milk, gatorade and carnation instant breakfast are nutritionally important and so we can deduct those also. We could also put in there butter but since the entire famiy uses it we would have to divide it out by the number of people with...
  13. L

    Who's working on their taxes?

    We have a note from the doctors that state that the whole milk, gatorade and carnation instant breakfast are nutritionally important and so we can deduct those also. We could also put in there butter but since the entire famiy uses it we would have to divide it out by the number of people with...
  14. L

    Who's working on their taxes?

    We have a note from the doctors that state that the whole milk, gatorade and carnation instant breakfast are nutritionally important and so we can deduct those also. We could also put in there butter but since the entire famiy uses it we would have to divide it out by the number of people with...
  15. L

    cf babies

    See if your CF center has a sample of enzymes they could have you try with your son. Both of my kids started on the coated capsules from the time they were diagnosised. One was 3 weeks old and the other was 5 days old. They never had trouble swallowing the beads, just learning to eat off of a...
  16. L

    cf babies

    See if your CF center has a sample of enzymes they could have you try with your son. Both of my kids started on the coated capsules from the time they were diagnosised. One was 3 weeks old and the other was 5 days old. They never had trouble swallowing the beads, just learning to eat off of a...
  17. L

    cf babies

    See if your CF center has a sample of enzymes they could have you try with your son. Both of my kids started on the coated capsules from the time they were diagnosised. One was 3 weeks old and the other was 5 days old. They never had trouble swallowing the beads, just learning to eat off of a...
  18. L

    cf babies

    See if your CF center has a sample of enzymes they could have you try with your son. Both of my kids started on the coated capsules from the time they were diagnosised. One was 3 weeks old and the other was 5 days old. They never had trouble swallowing the beads, just learning to eat off of a...
  19. L

    cf babies

    See if your CF center has a sample of enzymes they could have you try with your son. Both of my kids started on the coated capsules from the time they were diagnosised. One was 3 weeks old and the other was 5 days old. They never had trouble swallowing the beads, just learning to eat off of a...
  20. L

    TMI poop question

    My two kids with Cf always have bright green poop after eating something that is blue in color (for example: fruit snacks or blue gatorade). Hope that helps.
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