Cystic Fibrosis Forum (EXP)

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  1. M

    26, just diagnosed, advice/input/kind words welcome.

    Thanks for the long reply, the funny thing is that's not the first time I heard that doc's name brought up :p Unfortunately with Boston being about a 6 and a half hour drive, idk how I'd be able to see him reguarly. And yea I have problems with my bile already, elevated indirect bilirubin, upper...
  2. M

    26, just diagnosed, advice/input/kind words welcome.

    Awesome, I'll check that out now. Thanks!
  3. M

    26, just diagnosed, advice/input/kind words welcome.

    Thanks <3 In a weird way, im happy I was diagnosed because even with the erythmocilin for my gastroperesis and over the counter pancreas enzymes I'm seeing drastic imrovements when I eat and drink. It's not perfect yet, but I feel like I'm getting a part of my life back. I have domperidone on...
  4. M

    26, just diagnosed, advice/input/kind words welcome.

    Hey guys, sorry I haven't been on this morning, but wow, thank you for all the replies! I've been reading everything you guys said and will take all the advice and support and if you need anything on always here to help and give back as well. As far as the gene test, I will be getting it done...
  5. M

    26, just diagnosed, advice/input/kind words welcome.

    Hey what's up? That I know of, nothing indicated any of that with my specific situation, but I did have some issues with those related organs. Not sure if related to the cf in anyway, but when I was at the hopsital, I had elevated indirect billirubin and also when I got my hida scan my...
  6. M

    26, just diagnosed, advice/input/kind words welcome.

    Hey thanks for the replies! Yea, the doc mentioned the 58 is borderline and 70 is positive, but when asking about it he made it sound like he was pretty sure that in my case it was a positive testing. Will hopefully be getting more info this Thursday and will keep everyone updated. Just wanted...
  7. M

    26, just diagnosed, advice/input/kind words welcome.

    Hey guys, whats up? Here's my story.... For the past 6 months I've been having bad stomach problems, hard time keeping food or liquids down, throwing up after meals because I was too full, etc. I ended up losing around 40 lbs and just feeling not myself. I went to numerous doctors, got cat...
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