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The fight to get Vertex’s cystic fibrosis drug Orkambi available on England’s NHS continues, after pressure groups called on the government to implement a little-known law allowing to set aside patents and provide drugs for the benefit of society at a much cheaper price. A patient-led...

I went to the Blockchain Conference at the Beth Israel Deaconess Hospital in Boston last Thursday, January 31. It was an elite group of scientists and I had the opportunity to present our survey results for: Discovery, Research, and Profit. Your voices were HEARD! I will continue to report...

Do you know or have connections with http://www.akita-jet.com/ ? It should be a far better aerosol than our current one (the ones you have as well). The one we have is not able to deal with the 5 aerosols a day. It costs us an arm and a leg to keep it running :s

This in from a Dad in Europe.... Do you know about patients who sleep in an altitude tent? (http://altitudedream.com/en/) It clears the air and delivers more pure oxygen. It's expensive! Would like suggestions.

Eloxx Pharmaceuticals CEO Bob Ward is cognizant that one day, emerging science could usurp his company's approach to treating genetic diseases. While many biotechs are testing more experimental means of treating some of the 1,800 genetic diseases that impair the body's ability to produce...

Purdue University researchers have developed a new approach to treating the fourth-leading cause of death worldwide – lower respiratory infections. Lung infections, often caused by multi-drug-resistant bacteria, are deadly because the ‘superbugs’ are resistant to all available antibiotics...

https://www.bloomberg.com/news/articles/2018-06-15/deleting-your-online-dna-data-is-brutally-difficult Companies who use your DNA should compensate you for it! This is what is happening with Blockchain technologies. Stay tuned! Salt and Light, Imogene

Aridis is a late-stage biopharmaceutical company focused on discovering and developing innovative anti-infectives, such as targeted immunotherapies using fully human monoclonal antibodies (mAbs) to treat life-threatening infections. “AR-501 has the potential to offer patients more convenient...

https://pharmaphorum.com/top-stories/vertex-told-to-reveal-cf-drug-price-as-mps-begin/?utm_source=pharmaphorum+Top+Stories&utm_campaign=a6a14f4bdb-EMAIL_CAMPAIGN_2018_11_09_02_59&utm_medium=email&utm_term=0_b64138c678-a6a14f4bdb-439186353

https://pharmaphorum.com/news/vertex-european-approval-cystic-fibrosis/?utm_source=pharmaphorum+Daily+Newsletter&utm_campaign=d338668281-EMAIL_CAMPAIGN_2018_10_31_12_30_COPY_01&utm_medium=email&utm_term=0_a54496134b-d338668281-431716241

New Enzymes for CF https://azurrx.com/index.php/investors/press-releases/2018/117- Phase 2 study to begin! Help for patients with chronic pancreatitis! Salt and Light, Imogene

https://pharmaphorum.com/news/patients-call-for-cf-drug-price-agreement-ahead-of-meeting/?utm_source=pharmaphorum+Daily+Newsletter&utm_campaign=7374c4d6f5-EMAIL_CAMPAIGN_2018_03_14_COPY_02&utm_medium=email&utm_term=0_a54496134b-7374c4d6f5-431716241 Good Luck to the UK Patients/Caregivers! Salt...

I received this link from my minister at MarbleChurch.org...Reverend Gregory Johnson...he is a caregiver extroadinaire! Thanks Rev! https://www.caregiving.org/wp-content/uploads/2018/02/NAC-RareDiseaseReport_February-2018_WEB.pdf

Hi All! Know I will bring your words, the surveys! this is about Blockchain and Clinical Trials! https://blockchain.ieee.org/standards/clinicaltrialseurope18/speakers This is exciting. I will keep you updated. Salt and Light, Imogene

https://pharmaphorum.com/news/vertexs-orkambi-cf-drug-okayed-for-funding-in-australia/?utm_source=pharmaphorum+Daily+Newsletter+%28updated+at+17082017%29&utm_campaign=c377ffe5c9-EMAIL_CAMPAIGN_2018_03_14_COPY_114&utm_medium=email&utm_term=0_a54496134b-c377ffe5c9-431716241

https://www.fiercebiotech.com/biotech/boehringer-lands-option-cystic-fibrosis-gene-therapy

https://pharmaphorum.com/news/us-regulators-expand-label-for-vertexs-kalydeco-cf-drug/?utm_source=pharmaphorum+Daily+Newsletter+%28updated+at+17082017%29&utm_campaign=277d258e06-EMAIL_CAMPAIGN_2018_03_14_COPY_112&utm_medium=email&utm_term=0_a54496134b-277d258e06-431716241

Are you wondering.... How Can Blockchain Help Patients? Read what our new partner: Robert Chu has to say and STAY TUNED as our Health Opinion Leaders work with Embeema.com to create a Blockchain App for all where patients data is safe and patients get paid! Coming Soon within the next few...

Blockchain can lower our uncertainties. Listen to Bettina Warburg https://www.ted.com/talks/bettina_warburg_how_the_blockchain_will_radically_transform_the_economy/transcript See if you agree! The very thing that makes it work is our "Mutual Distrust" says Warburg! Collecting uncertainties...

We are IN! Beginning our process of forming a PILOT. Coming Soon! You may learn more by listening to Don Tapscott https://www.youtube.com/watch?v=Pl8OlkkwRpc