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We are still moving ahead...1150 participant will receive a $25.00 gift certificate. Melissa75, Corey Nislow PhD and I have been working on the White Paper for the Survey. I will be speaking at the World Orphan Drug Congress At the Congress, and with the great people I know as a founding...

cure-e-us Read my latest blog to see where the survey is leading us! thank you all 1146 who took the survey. We are still open! Www.cftechnology.org. Melissa75, Corey Nislow PhD and I have been working on the White Paper for the Survey. I will be speaking at the World Orphan Drug Congress...

We are a community of self-directed yet interconnected individuals, striking out into the unknown to build something better for ourselves and those that come after us—-sort of sounds like what is happening... Join us through the survey...so far 1092 participants! Discovery, research, and...

Where are we going? We are exploring different app companies...who can bring us AI and Blockchain...remember YOU own your DATA and most are agreeing you should be paid for it. We have some exciting meetings set up for this week. We have brilliant members here at CysticFibrosis.com, professional...

1051! and the 1050th participant receiving a $25.00 Gift Card is from Tennessee! Moving along...the 1075th participant will receive a $25.00 Gift Card... Every Participant matters! Patients and Caregivers...we are listening and we are looking for the right app company...a dynamic...

1041 now....and 70% of the participants answered Yes! We would like to be paid for our data! $25.00 gift card to participant 1050!

More and more are joining in! This is so important as we get ready to move to the next steps...dreaming of marrying AI and Blockchain? LittleLab4CF and I share our text messages...(of course I have to "look up" lots of definitions that he just "knows"!) so I add the links for your learning...

Yes! 1025 participants! The 1025th participant (from New York) received a $25.00 Amazon Gift Card. Keep on "keeping on"...in the background we are working to find the best APP to bring all your hard work together and make it easy for you to Self Manage and "see the results"...of all your hard...

YOU DID IT! We are over 1000 participants! And now we continue to move on...including more in this opportunity for Discovery, Research, and Profit! Every participant add his/her voice to our march forward. Find the survey at www.cftechnology.org And Thank YOU Indrepta for your help too! 3...

This looks like the week, we WILL reach 1000 participant! We are at 989! And two participants have come in from The Russian Federation! So what's next? 1. We will leave the survey open...why? because it is a tool for education..we are learning from the answers and you may be learning...

Wow! We are almost to 1000 paraticipants. For those of you who have already taken the survey, you know we are seeking, exploring, and interviewing companies that have or who are willing to work with us at developing a "high quality trait information platform". This will be able to track all...

Thanks LittleLab4CF for this great testimonial! Yes! We should continue with our survey and their is a big difference in the sequencing from companies like 23 and me and Ancestry.com Today, 23andMe ( 23andme.com ) and Ancestry ( ancestry.com ) are the two leading personal genomics companies...

942 participants. For participants 900 to 1000, there will be 3 random drawings and each will receive a free bottle of Indrepta! To be a winner, you need to leave your email address which is optional in question 16. Then we will email you for your snail mail address if you are chosen. When...

827 Participants...where are you from? 89% are from the US (710) , Every state is represented except Wyoming. States with 20 or more participants: California (74), Florida (50), NY (43), Pennsylvania (38), Texas (31), Colorado (26), Ohio (26), North Carolina (26), New Jersey (26), Michigan...

If you are from Ecuador or know members with CF from Ecuador, please contact us at info@cysticfibrosis.com. This is for an exciting new project we will be describing soon! Salt and Light, Imogene

Update! 781 participants so far. The 775th participant is a caregiver from Florida who received our $25.00 Amazon Gift Certificate...a $50.00 Gift Certificate for the 800th participant. We are aiming for 1000! If you haven't taken it, please take it...we have strength in numbers and we are...

Listened to this story last night...http://www.radiolab.org/story/match-made-in-marrow/ it was memorable. Data matters! Donors matter! We know this!

Meeting today we are interviewing a platform company that can customize for us and work with Blockchain. this is exciting! salt and light, imogene

http://cysticfibrosis.com/cure-e-us-2018/ Can this community lead the way for a change of all of healthcare? I think so! Happy New Year! Salt and Light, Jeanne

Here is a blog from our partner: Corey Nislow PhD http://cysticfibrosis.com/letter-from-corey-nislow/ Corey believes (after meeting you and me) and being part of our survey...there is a CALL for Change in the way Research is Done! Happy New Year! Salt and Light, Jeanne