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I am writing because I need advice from parents with cf children or teens/adults with cf. I have 3 babies with cf a 3 year old and 20 month old twins. My 3 year old's daily regime is pretty intense and the twins are not as bad but it is times 2. I am a stay at home mom and manage all the care...

Sophia just came out from the procedure. She was very irritable. Again, docs were so surprised see how much junk she had down there. They were surprised b/c she sounds clear as a bell through the stethoscope. Also she is very energetic. This happened last May when they did the bronch she always...

Sophia just came out from the procedure. She was very irritable. Again, docs were so surprised see how much junk she had down there. They were surprised b/c she sounds clear as a bell through the stethoscope. Also she is very energetic. This happened last May when they did the bronch she always...

Sophia just came out from the procedure. She was very irritable. Again, docs were so surprised see how much junk she had down there. They were surprised b/c she sounds clear as a bell through the stethoscope. Also she is very energetic. This happened last May when they did the bronch she always...

Thanks for the replies.... Sophia has been on IV for almost 3 weeks. She still is coughing. She is going to have another bronch tomorrow to see if anything is brewing deep in her lungs. We will see what happen.. Gina, mom to Sophia 3, Peter & Gavin 19 months, all w/cf df508 &ps849x

Thanks for the replies.... Sophia has been on IV for almost 3 weeks. She still is coughing. She is going to have another bronch tomorrow to see if anything is brewing deep in her lungs. We will see what happen.. Gina, mom to Sophia 3, Peter & Gavin 19 months, all w/cf df508 &ps849x

Thanks for the replies.... Sophia has been on IV for almost 3 weeks. She still is coughing. She is going to have another bronch tomorrow to see if anything is brewing deep in her lungs. We will see what happen.. <br /> <br /> <br />Gina, mom to Sophia 3, Peter & Gavin 19 months, all w/cf df508...

The plan is to be discharged on tues. She is going to be put on oral antibiotics at home. They said give it some time. Currently her treatments consist of: Albuteral, hyper-sal(just started),pulmozyme, tobi(every other month), cpt, flovent. And of course enzymes. Everything is administered 2x...

The plan is to be discharged on tues. She is going to be put on oral antibiotics at home. They said give it some time. Currently her treatments consist of: Albuteral, hyper-sal(just started),pulmozyme, tobi(every other month), cpt, flovent. And of course enzymes. Everything is administered 2x...

The plan is to be discharged on tues. She is going to be put on oral antibiotics at home. They said give it some time. Currently her treatments consist of: <br /> <br />Albuteral, hyper-sal(just started),pulmozyme, tobi(every other month), cpt, flovent. And of course enzymes. <br /> <br...

My daughter is 3 years old she has been in the hospital for almost two weeks for an acute exacerbation. She cultured serratia. Her baseline is no cough. She is suppose to go home on tuesday but she is still coughing. She has improved but is not completely better. In the past she has cultured...

My daughter is 3 years old she has been in the hospital for almost two weeks for an acute exacerbation. She cultured serratia. Her baseline is no cough. She is suppose to go home on tuesday but she is still coughing. She has improved but is not completely better. In the past she has cultured...

My daughter is 3 years old she has been in the hospital for almost two weeks for an acute exacerbation. She cultured serratia. Her baseline is no cough. She is suppose to go home on tuesday but she is still coughing. She has improved but is not completely better. In the past she has cultured...

Not sure about the fecal sample but both my boys have been on previcid since they were two months old they are now 19 months. They have not had any problems with it. Gina, mom to sophia, 3 Peter & Gavin, 19 months. All w/ cf df508 & py849x

Not sure about the fecal sample but both my boys have been on previcid since they were two months old they are now 19 months. They have not had any problems with it. Gina, mom to sophia, 3 Peter & Gavin, 19 months. All w/ cf df508 & py849x

Not sure about the fecal sample but both my boys have been on previcid since they were two months old they are now 19 months. They have not had any problems with it. <br /> <br />Gina, mom to sophia, 3 Peter & Gavin, 19 months. All w/ cf df508 & py849x

my daughter tends to get itchy feet. However it happens mostly when an exacerbation starts to come on. gina, mom to sophia, 3 w/cf, peter & gavin, 19 months w/cf... df508 & ps849x

my daughter tends to get itchy feet. However it happens mostly when an exacerbation starts to come on. gina, mom to sophia, 3 w/cf, peter & gavin, 19 months w/cf... df508 & ps849x

my daughter tends to get itchy feet. However it happens mostly when an exacerbation starts to come on. <br /> <br />gina, mom to sophia, 3 w/cf, peter & gavin, 19 months w/cf... df508 & ps849x

I would call the doctor to set up an appt for a throat culture there maybe something brewing.