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I wish it was as easy as a selenium deficiency! Here are some links below regarding his work. http://www.quackwatch.com/01QuackeryRelatedTopics/DSH/colloidalminerals.html http://nutra-smart.net/al.htm There is nothing wrong with looking into natural medicine as a complement to your regular cf...

Shay they work really well for me! My boobs don't allow it to be completely flat on each side like it might be for a guy (due to the location of my port) so I just make sure the top and sides are sealed perfectly and then the bottom is usually ok, just kind of wrinkled.

I use these for showering when my port is accessed. Should work with your Hickman cath too. http://www.aqua-guard.com

If you were supposed to start your period on oct 19 that means you would have already ovulated so having sex on the 18th would not result in a pregnancy.

I'm sure you were given that based on what bacteria you grow. I personally have only done the IV version of ceftaz but if it's unbearable because of taste/smell you could do as Printer suggested and check with your doc to see if there is another option that your bacteria is sensitive to. I...

I was introduced to the autogenic drainage like Red mentioned probably about 22 years ago. I haven't heard many people talk about it lately but it pops up every now and then. I'm not sure why I stopped doing it but I vaguely remember it being quite helpful for mucous clearance in combination...

When I get coughing attacks or have that annoying tickle cough that won't go away I find that drinking something warm like tea or especially warmed juice seems to help. Also eating something salty like crackers or pretzels seems to help too.

Fr me it varies. When I was working I would usually get a cold or something along those lines a few times a year. Maybe 2-3. Over The last few years I moved several times and always seemed to get some type of cold/sinus infection during that process that would hang on forever and eventually lead...

Believingjesus you should be able to get a copy of all of your plan benefits online through your insurance company or call them and ask for a paper copy. If you have specific questions about your plan it's probably best to go through your plan provider to get those answered. You could also work...

Thank you for the reminder that we can all be more compassionate.

I agree with Jshet. Culture results on the same day doesn't seem right. It wouldn't be enough time for the culture to actually grow anything! It's defintely possible they got his culture mixed up with someone else's. I've had that happen. Maybe call them and ask for them to double check on that...

Thanks Angelique! I'm in Portsmouth so I'm hoping to see them at Bedford whenever possible but wouldn't mind the trip to Lebanon when needed :)

Is anyone here seen at Dartmouth? I'm very happy at my current clinic at MGH but they are not considered in-network under my new insurance coverage. The out of network charges are so high it's just not an option for me to stay. I will be transferring to Dartmouth and have heard really good...

I haven't seen her post in quite some time. She may still be around though and just not posting. You could try sending her a pm.

There will be someone there on call over the holiday. They may not call you back but if your worried you can call

A 20-30% drop in 6 weeks and the docs just want you to add in some extra exercise? Have you stopped doing your treatments other than a decrease in exercise? I'm really shocked they didn't at least give you oral antibiotics. If you've completely stopped your treatments or have been really...

It's a good thought. The only drawback would be if we're sleeping while doing the vest we would not be pausing to cough or do huffs to clear the mucus so I'm not sure it would as helpful. Also it would be hard to do nebs like HTS which, for me at least, make the vest much more beneficial.

This may be an accredited CF center but they clearly have few if any adult patients. You need to get them to refer you to a larger adult clinic that is actually able to help you. The bit about needing to have a common mutation in order to have CF is just plain wrong and even as a pediatric doc...

Madmax, SO glad you were able to speak with the doctor and get the process started for genetic testing. I think it will be very helpful for you and will hopefully lead to a diagnosis so you can get the proper treatment and start feeling better. keep us updated :)

you may want to post this on the main adult forum. there are definitely people here that have gotten Kalydeco off label and I'm sure they would be more than happy to share their process with you!