Cystic Fibrosis Forum (EXP)

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  1. R

    What should I do?

    What is their reasoning for doing it in the office? I have never heard of such a thing. I definitely think she should be started on it now rather than waiting until next week - that's ridiculous! I would call the clinic's on-call MD tomorrow and ask if she can start it right away at home. I...
  2. R

    What should I do?

    <p>What is their reasoning for doing it in the office? I have never heard of such a thing. I definitely think she should be started on it now rather than waiting until next week - that's ridiculous! I would call the clinic's on-call MD tomorrow and ask if she can start it right away at home. I...
  3. R

    How much do you THINK about CF?

    To the mom's of CF children - this poll was absolutely intended for you too! I think the parents' perspective is just as important because you do most of the thinking about CF for your child. I also agree with you guys when you say that you think about CF more when things aren't going so well...
  4. R

    How much do you THINK about CF?

    To the mom's of CF children - this poll was absolutely intended for you too! I think the parents' perspective is just as important because you do most of the thinking about CF for your child. I also agree with you guys when you say that you think about CF more when things aren't going so well...
  5. R

    How much do you THINK about CF?

    <p>To the mom's of CF children - this poll was absolutely intended for you too! I think the parents' perspective is just as important because you do most of the thinking about CF for your child. <p>I also agree with you guys when you say that you think about CF more when things aren't going so...
  6. R

    Advice Requested

    I was actually just thinking about this same issue this morning.  My son was in the room with me while I was vesting/nebbing and he asked me if I could turn up the TV because he couldn't hear over all my noise.  I realized that he really doesn't know what I'm doing and it's just normal to him. ...
  7. R

    Advice Requested

    I was actually just thinking about this same issue this morning. My son was in the room with me while I was vesting/nebbing and he asked me if I could turn up the TV because he couldn't hear over all my noise. I realized that he really doesn't know what I'm doing and it's just normal to him. He...
  8. R

    Advice Requested

    <p>I was actually just thinking about this same issue this morning. My son was in the room with me while I was vesting/nebbing and he asked me if I could turn up the TV because he couldn't hear over all my noise. I realized that he really doesn't know what I'm doing and it's just normal to him...
  9. R

    How much do you THINK about CF?

    <span style="background-color: #ffffff; font-family: verdana,geneva; color: #333399; font-size: small;">As I was driving to work this week, I noticed that I think about CF a lot while I'm by myself.  Whether it be thinking about my CF friends who have been sick, how I'm feeling that day, how I...
  10. R

    How much do you THINK about CF?

    <span style="background-color: #ffffff; font-family: verdana,geneva; color: #333399; font-size: small;">As I was driving to work this week, I noticed that I think about CF a lot while I'm by myself. Whether it be thinking about my CF friends who have been sick, how I'm feeling that day,how I...
  11. R

    How much do you THINK about CF?

    <p><span style="background-color: #ffffff; font-family: verdana,geneva; color: #333399; font-size: small;">As I was driving to work this week, I noticed that I think about CF a lot while I'm by myself. Whether it be thinking about my CF friends who have been sick, how I'm feeling that day,how I...
  12. R

    Oral Thrush-Need help!

    Hi Marci, I have been on Advair for years, but I am one of the lucky people who is causes chronic thrush. I have to take Nystatin daily to keep it at bay. And I know that can be standard treatment for people that have thrush all the time. But hopefully that's not the case with you. Good luck
  13. R

    Oral Thrush-Need help!

    Hi Marci, I have been on Advair for years, but I am one of the lucky people who is causes chronic thrush. I have to take Nystatin daily to keep it at bay. And I know that can be standard treatment for people that have thrush all the time. But hopefully that's not the case with you. Good luck
  14. R

    Oral Thrush-Need help!

    Hi Marci, <br /> <br />I have been on Advair for years, but I am one of the lucky people who is causes chronic thrush. I have to take Nystatin daily to keep it at bay. And I know that can be standard treatment for people that have thrush all the time. But hopefully that's not the case with...
  15. R

    testing this new posting/reply format.

    Might as well add in my question too... Is there no more "Who's Online" chat window?
  16. R

    testing this new posting/reply format.

    Might as well add in my question too... Is there no more "Who's Online" chat window?
  17. R

    testing this new posting/reply format.

    Might as well add in my question too... <br /> <br />Is there no more "Who's Online" chat window?
  18. R

    Mother's day

    What a great day! Isn't it great to feel "normal" once in awhile? And I'm sure your son was thrilled you were all there to see him play soccer. Great story!
  19. R

    Mother's day

    What a great day! Isn't it great to feel "normal" once in awhile? And I'm sure your son was thrilled you were all there to see him play soccer. Great story!
  20. R

    Mother's day

    What a great day! Isn't it great to feel "normal" once in awhile? And I'm sure your son was thrilled you were all there to see him play soccer. Great story!
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